ME/CFS
Outcome unclearNeeds ongoing treatment
ME/CFS with POTS, limited standing and post-social crashes; tried protein shakes
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Nov 2024
In their words
- Condition: ME/CFS
I can tolerate social situations longer before I crash.
In context ↗ - At worst: Mild
I can tolerate social situations longer before I crash.
In context ↗
Summary
Fox 90780 described having POTS, with limited standing tolerance, crashes after social situations and randomly worse days tracked against barometric pressure. In April 2024 protein powder shakes and occasional protein bars helped a lot; they had tried protein after low appetite and getting full quickly kept their intake low. By November 2024 they still crashed after socialising; a drink or two temporarily energized them but was not a reliable treatment.
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What they tried
Also tried
Their words about each treatment
- checking barometric pressure · Helped
I check the barometric pressure probably weekly during the fall-spring months and it's helped a bit to try and anticipate if I'm gonna randomly have a worse day or couple of days.
In context ↗ - protein powder · Helped a lot
I started trying protein powder randomly ... omg it helps so freaking much
In context ↗ - alcohol · Helped
I tend to feel more energized when I've had a drink or 2, I can tolerate social situations longer before I crash.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | ME/CFS with POTS; standing tolerance and social situations limited by crashesI also have POTSIn context ↗ | Not stated |
| 2024-04-23 | started protein powder shakes and occasional protein bars, felt much betteromg it helps so freaking muchIn context ↗ | Not stated |
| 2024-11-14 | still crashes after social situations; a drink or two temporarily energizes themI can tolerate social situations longer before I crashIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I also have POTS
In context ↗ - Post-exertional malaise
I can tolerate social situations longer before I crash
In context ↗