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Long COVID Mild → relapsedIll 5 months before improving or writing

Long COVID with head pressure, dizziness and crashes, improved then relapsed worse

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
5 months
Last post
Dec 2020
In their words
  • Condition: Long COVIDI’ve been having some very uncomfortable symptoms since getting sick 4-5 months ago (which doctors now think could have been corona). In context ↗
  • At worst: MildStill unable to run but was feeling like I could walk outside and get up and do activities. In context ↗
  • Now: RelapsedNow that I got sick with corona, it brought back all those painful head symptoms that I was describing... In context ↗
  • Began after: another virusI got sick back in late January with this “flu”. In context ↗
Read from 4 of their posts and comments; links to the 3 this page draws on

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Summary

A man in the US fell ill in late January 2020 with a flu-like illness doctors later thought might have been COVID. For months he had head pressure, dizziness, blood pooling, palpitations and next-day crashes after exertion, while scans and blood work were normal. He improved in June and July, then symptoms returned worse in August, and a positive COVID test in December brought the head symptoms and breathlessness back.

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What they tried

Also tried

laying somewhat flat and wrapping a band around my head· Helpedrun cold water on my eyes· Not said
Their words about each treatment
  • laying somewhat flat and wrapping a band around my head · HelpedThe only thing that seems to help is laying somewhat flat and wrapping a band around my head to relieve the pressure. In context ↗
  • run cold water on my eyes · Not saidforces me to run cold water on my eyes to relax my heart rate In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered6 mo9 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 5 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
late January 2020flu-like illness, later thought possibly COVIDI got sick back in late January with this “flu”. In context ↗Not stated
June-July 2020a few good weeks; back at the gym and runningi started to have a few good weeks in June and July...going to the gym, running, working etc. In context ↗Near normal
August 2020symptoms returned worse, possibly after overexertionmaybe I overexerted myself or something was triggered, but I got the worst of these symptoms again. In context ↗Mild
December 2020COVID infection brought back head symptoms and breathlessnessNow that I got sick with corona, it brought back all those painful head symptoms that I was describing... In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseReally Fatigued and lightheaded the next day if i over exert myself In context ↗
  • Headaches & migraineThrobbing heavy head pressure when waking up In context ↗
  • POTS & dysautonomiaBlood pooling into my knees and legs when laying down for long periods of time In context ↗
  • Heart symptoms & palpitationsTachycardia and heart palpitations anytime I use the bathroom In context ↗
  • Gut problemsmakes me nauseous and feel like throwing up In context ↗
  • Temperature regulationfeeling extreme hot internally at random times of the day In context ↗
  • BreathlessnessI’ve been dealing with shortness of breath as well. In context ↗

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Asking aboutDew 45421’s story

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