Unable to work with ME/CFS, now a little better with Wegovy and Botox
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Nov 2025
In their words
- Condition: ME/CFS
it strangely does help a bit with the ME symptoms
In context ↗ - At worst: Moderate
Now I'll be going home with a letter that says I can't work right now and I need to go on benefits.
In context ↗ - Now: Somewhat better
I have gotten a little better actually in the last months.
In context ↗
Read from 15 of their posts and comments; links to the 10 this page draws on
Summary
Kestrel 37993 has ME/CFS and was unable to work, attending a monthly book club and therapy sessions when energy allowed. Psychotherapy helped them cope with crashes, and Botox for cervical dystonia eased neck pain and slightly reduced fatigue. By March 2025 they had started Wegovy, which reduced pain and fatigue within hours and raised their activity threshold; by late 2025 they were a little better, though PEM had been noted earlier that year.
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What they tried
What they credit
Also tried
Their words about each treatment
- Psychotherapy · Helped
It helped me regain some sense of self worth and to calm myself down when shit gets too overwhelming.
In context ↗ - Botox · Helped
Happy to report that I have no side effects and it does elevate my neck pain, which in turn helps a little bit with the overall fatigue. It wears off way too fast though.
In context ↗ - Clinic stay (inpatient rehab) · Not said
I still had crashes though unfortunately and the clinic team was thinking of sending me home, but it got better after they accommodated my schedules so I could at least stay until the end.
In context ↗ - Autogenic training · Helped
Also, autogenic training helps me calm down my thoughts.
In context ↗ - Wegovy · Helped
It didn't cure me, but it helped reduce the pain and inflammation.
In context ↗
Approaches: GLP-1 drugs
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2024-05-29 | Living with ME/CFS, attending a monthly book club and therapy, unable to workI had to miss out on the first meeting and I hope I can attend the next.In context ↗ | Moderate | |
| 2024-10-19 | Crashes during an inpatient clinic stayI still had crashes though unfortunatelyIn context ↗ | Moderate | |
| 2025-03-16 | Felt better hours after first Wegovy doseliterally hours after the first dose I suddenly felt a lot betterIn context ↗ | Mild | Semaglutide (Ozempic, Wegovy) |
| 2025-10-28 | A little better over recent months on WegovyI have gotten a little better actually in the last months.In context ↗ | Mild | Semaglutide (Ozempic, Wegovy) |
Adverse events
- “I still had crashes though unfortunately ... it got better after they accommodated my schedules” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
the PEM is still there, so better be careful
In context ↗ - Pain & fibromyalgia
It reduced the muscle pain and the fatigue
In context ↗ - Anxiety & low mood
I feel like I wasted much of the last years due to my depression and now I'm wasting time because of fatigue.
In context ↗
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