Bedridden at worst with long COVID, now much better though symptoms persist
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 18 months
- Last post
- Dec 2023
In their words
- Condition: Long COVID
Seven months in and still having chest pains.
In context ↗ - At worst: Severe
I am better than being bedridden, but work is all I can manage, barely
In context ↗ - Now: Much better
I am better than being bedridden, but work is all I can manage, barely and that adds stress with a family.
In context ↗ - Began after: COVID
before I had covid
In context ↗
Summary
Rain 92554 developed long COVID with chest pain, fatigue and anxiety, and was bedridden at worst. Seven months in, chest pain was becoming less frequent; they were taking a daily vitamin, vitamin D3, fish oil, CoQ10, turmeric and ginger. By December 2023, about 17 months in, they were better than bedridden but could barely manage work alongside family stress, with chest tightness, pain, fatigue and anxiety spikes persisting.
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What they tried
Also tried
Their words about each treatment
- daily vitamin · Not said
I take in total a daily vitamin, vitamin D3, fish oil
In context ↗ - CQ10 · Not said
have added CQ10 (good for heart function)
In context ↗ - turmeric · Helped
turmeric and ginger at nights that help with inflammation
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| mid-2022 | Long COVID after a COVID infectionbefore I had covidIn context ↗ | Not stated |
| — | bedriddenI am better than being bedriddenIn context ↗ | Severe |
| 2023-12-29 | better than bedridden, but work is all they can managework is all I can manage, barelyIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
My chest is always tight or in pain.
In context ↗ - Anxiety & low mood
Then the horrible fatigue and anxiety spikes.
In context ↗