ME/CFS with palpitations, breathlessness and fatigue, somewhat better with mind-body work
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 8 months
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I’m around 8 months into my CFS recovery
In context ↗ - At worst: Mild
I’m able to walk and socialise and things and even on some of my heaviest days with over 20-30k steps I’ve seen recovery
In context ↗ - Now: Somewhat better
it’s started to ease a little. I definitely feel more free. However not there yet still have a journey ahead
In context ↗ - Began after: another virus
I got diagnosed with post viral fatigue, to this day still u sure what virus it what or how this happened
- Says they never had: Flu-like symptoms
I've never had swollen glands
- Says they never had: Pain & fibromyalgia
I've never had swollen glands, joint/muscle pain
- Says they never had: Sleep problems
I've never had swollen glands, joint/muscle pain, interrupted sleep
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
A 20-year-old athlete became ill after an unidentified virus in December 2025 with palpitations, air hunger, breathlessness and fatigue, diagnosed as post-viral fatigue and inappropriate sinus tachycardia. They came off work; propranolol and the Levine protocol gave only partial stability. A mind-body approach (Sarno, Sachs) from April 2026 brought improvement; by October 2026 some symptoms were gone but others still raged.
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What they tried
What they credit
Also tried
Their words about each treatment
- full rest · Not said
at first I stopped everything ... tried remedies such as full rest
- propranalol · Helped
I am now on propranalol as of 2 months ago, which helped get a bit of stability
In context ↗ - Levine protocol · Helped
3 weeks ago I began the Levine protocol used to treat POTS/IST ... its helped a bit but I had to come back off work as it was getting in the way
In context ↗ - putting down the smart watch · Not said
completely putting down the smart watch
In context ↗ - TMS (mind body syndrome) · Helped a lot
diving into the TMS(mind body syndrome) and learning about it and the psychosomatic side ... I’m 2 weeks into recovery and have seen big improvements
Approaches: Brain retraining
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| late December 2025 | post-viral onset with palpitations, air hunger, high heart rate and fatiguelate December I started having symptoms like palpitations, air hunger, and an elevated HR, and HRV (about +30%) and bad fatigueIn context ↗ | Mild | |
| 2026-04-24 | symptoms slowly worsened and they came off workI went from running long distance, mountaineering an rock climbing week in week out to full stop nothingIn context ↗ | Mild | |
| 2026-04-29 | started a mind-body (TMS) approach and felt better within dayssince diving into the TMS(mind body syndrome) ... And I’ve actually been doing a lot better alreadyIn context ↗ | Mild | Sarno / TMS / somatic tracking / JournalSpeak |
| 2026-05-13 | two weeks into the mind-body recovery work with big improvementsI’m 2 weeks into recovery and have seen big improvementsIn context ↗ | Mild | Sarno / TMS / somatic tracking / JournalSpeak |
| 2026-10-02 | some symptoms mostly gone, others still bad; not recovered yetit’s started to ease a little. I definitely feel more free. However not there yet still have a journey aheadIn context ↗ | Mild | Sarno / TMS / somatic tracking / JournalSpeak |
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
I get bad heart palpitations
In context ↗ - Breathlessness
dealing with bad breathlessness even when lying down
In context ↗ - Anxiety & low mood
the anxious, overwhelmed version of your nervous system
In context ↗ - POTS & dysautonomia
I was diagnosed with IST (innaproppriate sinus tachycardia)
In context ↗ - Temperature regulation
waking with sweats
In context ↗
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