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ME/CFS Outcome unclear

ME/CFS with attention deficit; Adderall helped, then tolerance and withdrawal

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Dec 2021
In their words
  • Condition: ME/CFSim diagnosed with secondary ADD from ME In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Beacon 68738 has ME and was diagnosed with secondary attention deficit from it, and was prescribed Adderall. The stimulant helped them do more, but tolerance rose until they were on the highest dose allowed, withdrawal was severe and lost appetite left them malnourished. The Moderna booster and earlier Pfizer shots each caused a bad reaction that peaked the day after and then improved quickly.

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What they tried

Their words about each treatment
  • adderall · Helpedit has helped me a lot with being able to do more, but my tolerance keeps getting higher and i am on the highest dose allowed now. withdrawals are fucking awful In context ↗
  • COVID vaccination as treatment · Not saidmy reaction to the moderna booster was in between how bad 1st and 2nd pfizer shots were. in all cases it was the absolute worst the day after i got it and improved quickly In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
—ME onset; later given a diagnosis of secondary attention deficit from MEim diagnosed with secondary ADD from ME In context ↗
2021-12-12on Adderall, able to do more but at the highest dose allowedit has helped me a lot with being able to do more, but my tolerance keeps getting higher and i am on the highest dose allowed now In context ↗Amphetamine salts (Adderall)

Adverse events

Symptoms mentioned

Their words about their symptoms

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