ME/CFS
Mild → no benefit
Mild-to-moderate ME/CFS, still no overall change with tracking and diet
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Oct 2023
In their words
- Condition: ME/CFS
i’m currently having mild/moderate cfs symptoms, not yet diagnosed
In context ↗ - At worst: Mild
i’m mild/moderate so that was a tolerable exertion for me
In context ↗ - Now: No benefit
i’m mild/moderate so that was a tolerable exertion for me
In context ↗
Read from 10 of their posts and comments; links to the 7 this page draws on
Summary
The user reported mild-to-moderate ME/CFS symptoms in late 2022, undiagnosed, and was still at that level in October 2023. A $100 Garmin Vivosmart 4 helped them track heart rate and pace better; they also adopted an anti-inflammatory diet and used loop earplugs for sensory overload and a weighted blanket for self-soothing. IV ketamine every six weeks helped depression but not muscle aches. No overall change was reported.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- antidepressants · Not said
i’ve been on antidepressants and in therapy for years
In context ↗ - garmin vivosmart 4 · Helped
then that has helped me listen more closely to my body and prioritize resting before my body forces me to.
In context ↗ - anti-inflammatory diet · Not said
i’ve had to adopt an anti-inflammatory diet and have lost weight from that without exercise.
In context ↗ - paxlovid · Not said
for me, the first day of paxlovid was by far the worst with that nasty metallic taste.
In context ↗ - loop earplugs · Helped
i like the loop earplugs for when i have to go out in a noisy environment and feel irritable and overstimulated by normal sensory stuff.
In context ↗ - white noise machine · Helped
plus other items that help with self-soothing, white noise machine, weighted blanket. they’re all helpful to me.
In context ↗ - weighted blanket · Helped
they’re all helpful to me.
In context ↗ - pacing · Helped
it sometimes works
In context ↗ - IV ketamine · Helped
it gave a different kind of boost for my depression and life outlook
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| December 2022 | mild/moderate CFS symptoms, not yet diagnosed, starting to pace with a wearablei’m currently having mild/moderate cfs symptoms, not yet diagnosedIn context ↗ | Mild |
| October 2023 | still mild/moderate; pacing, sensory aids, ketamine for depressioni’m mild/moderate so that was a tolerable exertion for meIn context ↗ | Mild |
Adverse events
- Paxlovid / nirmatrelvir“for me, the first day of paxlovid was by far the worst with that nasty metallic taste” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Light & noise sensitivity
feel irritable and overstimulated by normal sensory stuff
In context ↗ - Anxiety & low mood
it gave a different kind of boost for my depression and life outlook
In context ↗ - Pain & fibromyalgia
no significant effect on my body and muscle aches, etc.
In context ↗