Bedbound for months with long COVID, now about 70% of normal after treatment
- Condition
- Long COVID
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- Not stated
- Last post
- Aug 2023
In their words
- Condition: Long COVID
if I get reinfected, I go back to miserable town for 2 weeks.
In context ↗ - At worst: Very severe
I was bed bound for months with Tachycardia, shortness of breath, pots, vertigo, couldn't even go to the bathroom by myself
In context ↗ - Now: Much better
I'm like at 70 percent, enough to work and take care of myself.
In context ↗ - Began after: COVID
Also, if I get reinfected, I go back to miserable town for 2 weeks.
Read from 8 of their posts and comments; links to the 6 this page draws on
Summary
A Reddit user with long COVID was bedbound for months with tachycardia, POTS, vertigo and breathlessness and could not get to the bathroom alone. Three rounds of treatment since 2021, a bit expensive but worth it, left them at about 70% of normal — enough to work and care for themselves, with good and bad days. If reinfected, they go back to feeling miserable for two weeks, and breathlessness persisted.
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What they tried
What they credit
Also tried
Their words about each treatment
- Bruce Patterson protocol · Helped a lot
I've done 3 rounds since 2021, and it worked for me ... I'm like at 70 percent, enough to work and take care of myself.
In context ↗ - listerine · Helped
Yes and It got better after using listerine.
In context ↗ - Fluconazole · No change
I've taken anti-fungal med called Fluconazole for almost 20 days and it's not working.
In context ↗ - prednisone · Helped
They put me prednisone 50 mg for 5 days. I don't feel like my throat is closing anymore, but I still have shortness of breath.
In context ↗ - Keto · Helped a lot
I fixed my fatty liver with Keto. ... Meats and water were all I could eat for about 4 months.
In context ↗
Approaches: Antivirals
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | bedbound for months with tachycardia, POTS, vertigo and breathlessnessI was bed bound for months with Tachycardia, shortness of breath, pots, vertigo, couldn't even go to the bathroom by myself, and couldn't even eat carbs.In context ↗ | Very severe |
| 2023-08-26 | improved to about 70% after three rounds of the Bruce Patterson protocolI've done 3 rounds since 2021, and it worked for me. ... I'm like at 70 percent, enough to work and take care of myself.In context ↗ | Mild |
| 2023-08-28 | still about 70%, with good and bad days, and breathlessness persistsUnfortunately, i still have my good and bad days.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
was bed bound for months with Tachycardia, shortness of breath, pots, vertigo
In context ↗ - Heart symptoms & palpitations
was bed bound for months with Tachycardia
In context ↗ - Breathlessness
I don't feel like my throat is closing anymore, but I still have shortness of breath.
In context ↗
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