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Long COVID Moderate → somewhat betterIll 2 months before improving or writing

Long COVID cramps, dizziness and depersonalised fog, some improvement with time and NAC

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
2 months
Last post
Jun 2024
In their words
  • Condition: Long COVIDafter hearing and stumbling upon the "long covid" symptoms I believe it most likely is In context ↗
  • At worst: ModerateI feel like it’s too dangerous for me to drive as well because of this weird state I'm in. In context ↗
  • Now: Somewhat betterI can’t say that I’m 100% but I’ve improved significantly over the last 3-4 months that I’ve had it. ... 5 months in, hoping one day there’s relief.
  • Began after: COVIDSo I got COVID in December of 2023. In context ↗
Read from 4 of their posts and comments; links to the 3 this page draws on

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Summary

A 22-year-old who caught COVID in December 2023 developed severe stomach cramps and blood in stool, then a month later constant dizziness and a foggy, depersonalised state that made driving feel unsafe. Five months in they said they had improved significantly over three to four months and believed time was the main healer, with NAC helping a little; lion's mane made things worse. They were still hoping for relief.

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What they tried

Their words about each treatment
  • Lions mane · WorseI've tried Lions mane (made it worse) In context ↗
  • multivitamins · Not saidI've been on multivitamins & omega ... Idk if any of those are helping In context ↗
  • magnesium glycinate · Not saidi just recently stopped taking magnesium glycinate bc i heard it can cause these symptoms if you are producing too much serotonin In context ↗
  • time · HelpedI truly believe time is the best for this In context ↗
  • NAC · HelpedI’ve tried many supps but the only thing that’s been helping a little bit is NAC In context ↗

Approaches: Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
December 2023COVID-19 with severe stomach cramps, blood in stool, tinnitus and stiff neckSo I got COVID in December of 2023. In context ↗Mild
about 1-2 months after COVIDconstant dizziness and a foggy, depersonalised state; too unsafe to driveit was like I had 0 awareness, I had this dizzy like feeling without being dizzy (I still get it sometimes), and nothing felt real, it was 100x of what im feeling now. In context ↗Moderate
2024-05-13significant improvement in the foggy/dissociated state over 3-4 monthsI can’t say that I’m 100% but I’ve improved significantly over the last 3-4 months that I’ve had it. In context ↗MildTime and spontaneous remission
2024-06-24still struggling, NAC helping a little5 months in, hoping one day there’s relief. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogthis weird foggy/out of it state of mind that I've been stuck in to this day In context ↗
  • POTS & dysautonomiaI had this dizzy like feeling without being dizzy (I still get it sometimes) In context ↗
  • Gut problemsThe cramp/burning feeling in my stomach lasted for at least a month or so before it went away. In context ↗
  • TinnitusI then started to have tinnitus and a stiff neck, but this didn't last too long. In context ↗
  • Anxiety & low moodI have SEVERE health anxiety. In context ↗

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