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Long COVID Mild → no benefitIll for 17 months

Long COVID with extreme tiredness and aching legs; Novavax booster gave no benefit

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill for
17 months
Last post
Oct 2024
In their words
  • Condition: Long COVIDI got COVID 9 months ago. In context ↗
  • At worst: Mildbad leg aches and general lack of energy ... don't have enough energy for my normal levels of exercise In context ↗
  • Now: No benefitIn the past 2 weeks I've been having bad leg aches and general lack of energy In context ↗
  • Began after: COVIDI got COVID in May and recovered rather quickly, about a week. In context ↗
Read from 5 of their posts and comments; links to the 3 this page draws on

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Summary

Falcon 99693 caught COVID in May and recovered within a week, then five months later developed extreme tiredness, hot and cold spells, aching legs and lost strength. Nine months after infection they had bad leg aches, low energy even at rest and too little energy for their usual exercise, though light movement eased the aches. After a Novavax booster in late 2024 they had four days of insomnia.

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What they tried

Their words about each treatment
  • COVID vaccines / Novovax booster · Not saidFully vaccinated and boostered, so I think that helped. In context ↗
  • melatonin · No changeI couldn't sleep even with melatonin In context ↗
  • Zzzquil · Not saidhad to take Zzzquil last night to get a crappy 5 hours of sleep In context ↗
  • light exercise · HelpedMoving around and light exercise helps ease the aches but I also don't have enough energy for my normal levels of exercise. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered6 mo9 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 5 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
May 2023COVID infection, recovered in about a weekI got COVID in May and recovered rather quickly, about a week. In context ↗Not stated
October 2023sudden extreme tiredness, hot and cold spells, aching muscles, lost strengthI've been feeling a sudden bout of extreme tiredness in the past week In context ↗Mild
February 2024bad leg aches and low energy, too little energy for usual exerciseIn the past 2 weeks I've been having bad leg aches and general lack of energy In context ↗Mild
October 2024four days of insomnia after Novavax boosterI took the Novovax booster last Saturday. I have been having insomnia for 4 days straight now. In context ↗Not stated

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Muscle weaknessLost most of my strength for the past few days In context ↗
  • Pain & fibromyalgiamy muscles are tired and achy, especially legs In context ↗
  • Temperature regulationsome hot/cold spells that feel like a flu fever but I tested multiple times and never had an actual fever In context ↗
  • Sleep problemsI have been having insomnia for 4 days straight now In context ↗

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