ME/CFS with flu-like symptoms, insomnia and joint pain, now recovered after pacing and LDN
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
I also have mostly recovered from me/cfs, with small relapses.
In context ↗ - At worst: Mild
I was only mildly affected- I had continuous flu like symptoms, insomnia and joint pain and fatigue but I was able to do household tasks like cook (with breaks) or drive to doctors appointments.
In context ↗ - Now: Recovered
I am also a source of hope: I am now recovered! I work, exercise and socialize again!
In context ↗ - Began after: COVID
after I got Covid in 2021, and I didn’t recover after 6 weeks
In context ↗
Read from 7 of their posts and comments; links to the 4 this page draws on
Summary
Crocus 62966 fell ill with COVID-19 in 2021 and was mildly affected, with continuous flu-like symptoms, insomnia, joint pain and fatigue. She paced carefully, meditated, visualised and slowly increased walks with extra rest, and took LDN and quercetin from a CFS specialist. She later called herself fully recovered, working, running and hiking, though stress could still bring insomnia and occasional joint pain.
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What they tried
What they credit
Also tried
Their words about each treatment
- Pacing · Helped
I still have to pace and watch out for stress.
In context ↗ - Meditation and visualization · Helped
After the intense period of illness passed I began to meditate and visualize.
In context ↗ - Graded walking, then exercise and weight lifting · Helped
I then started walking- increasing the distance very very slowly ( about 10% each week as suggested in the podcast) while also increasing the rest time.
In context ↗ - low dose naltrexone · Helped
who prescribed low dose naltrexone and quercetin for mast cell stability. I would say it didn’t hurt but if it did help it was very slowly and subtly.
In context ↗ - Internal Family Systems therapy · Helped
Internal Family Systems therapy was also helpful.
In context ↗ - massage · Not said
I tried other healing modalities too- plus massage, TCMand more „woo woo“ modalities too like energy work.
In context ↗
Approaches: CBT & mindset · Mind-body practices · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | COVID-19, did not recover after six weeksafter I got Covid in 2021, and I didn’t recover after 6 weeksIn context ↗ | Mild | |
| — | began meditation, visualisation and very slowly increasing walks with extra restAfter the intense period of illness passed I began to meditate and visualize.In context ↗ | Mild | Meditation, yoga, breathwork |
| 2025-08-20 | mostly recovered, able to hike, run 10k and work part time but still pacingI also have mostly recovered from me/cfs, with small relapses. I am able to Hike, runn10k, work part time etc. but I still have to pace and watch out for stress.In context ↗ | Near normal | Pacing and the energy envelope |
| 2026-07-18 | recovered, working, exercising and socialisingI am now recovered! I work, exercise and socialize again!In context ↗ | Recovered |
Symptoms mentioned
Their words about their symptoms
- Flu-like symptoms
I had continuous flu like symptoms
In context ↗ - Sleep problems
stress can easily cause insomnia
In context ↗ - Pain & fibromyalgia
I still get the joint pain occasionally when u do too much
In context ↗ - Post-exertional malaise
I still have to pace and watch out for stress
In context ↗
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