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ME/CFS Outcome unclear

ME/CFS with tingling, burning toes, now trying a newer form of thiamine

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Jul 2024
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A person posting in r/cfs in July 2024 reported recent success with a newer form of thiamine (TTDF), which they said is harder to find and expensive. The tingling and burning pain in their toes started improving overnight, though it was not gone, and they were very optimistic. They noted that high doses of thiamine have to be balanced with the other B vitamins.

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What they tried

Their words about each treatment
  • TTDF (a newer form of thiamine) · Helpedthe tingling, burning pain in my toes started improving overnight. It's not gone, but I'm very optimistic now. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Neuropathy & tinglingthe tingling, burning pain in my toes started improving overnight. It's not gone In context ↗

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