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Long COVID Severe → no benefitIll for 6 months

Bedridden with long COVID joint and back pain, still no improvement

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill for
6 months
Last post
Jul 2023
In their words
  • Condition: Long COVIDI’ve been having joint and muscle problems the whole time I’ve had LC In context ↗
  • At worst: Severegeneral joint and back pain that keeps me bed ridden In context ↗
  • Now: No benefitIt definitely doesn’t solve the issue completely but it helps quite a bit In context ↗
  • Began after: COVIDthe whole time I've had LC
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A person about six months into long COVID described ongoing joint and muscle problems, with joint and back pain bad enough to keep them bedridden, and shoulder pain radiating to the neck and head. Heat packs, ice and magnesium gave partial relief, while rest and pacing were important, and physiotherapy had to start very slowly because even light sessions flared their symptoms. An MRI and X-rays came back normal.

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What they tried

Their words about each treatment
  • hot compresses / heating pad · Helpedone of the only things that’s helped with the pain is heating pads and ice packs ... it helps quite a bit In context ↗
  • ice packs / icing · Helpedas well as icing the area that hurts ... It definitely doesn’t solve the issue completely but it helps quite a bit
  • resting and pacing · HelpedResting and pacing my self is also really important. In context ↗
  • physiotherapy · WorseI was put in physiotherapy for my pain ... even light PT made my symptoms flare up quite bad In context ↗
  • magnesium supplements · HelpedI’ve also been taking magnesium supplements for joint pain and that seems to have a slight positive effect on the shoulder pain. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
onsetlong COVID with joint and muscle problems from the startI've been having joint and muscle problems the whole time I've had LC. In context ↗Not stated
2023-07-08joint and back pain keeping them bedridden; only partial relief from heat, ice and magnesiumas well as just general joint and back pain that keeps me bed ridden. (6 months into LC my self) In context ↗Severe

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaI've been having joint and muscle problems the whole time I've had LC. In context ↗
  • Post-exertional malaisein the begging even light PT made my symptoms flare up quite bad In context ↗
  • Gut problemsthe pain just makes me feel sick all the time In context ↗

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Asking aboutGlade 41306’s story

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