ME/CFS
Severe → no benefitIll for 2 years
Undiagnosed ME/CFS, sleeping up to 20 hours a day, no better after CPAP
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 2 years
- Last post
- Nov 2024
In their words
- Condition: ME/CFS
I've been trying to convince him its CFS since I started my CPAP
In context ↗ - At worst: Severe
it never made me sleep 14-20 hours a day. It never made me need a 3-4 hour nap every day
In context ↗ - Now: No benefit
since I started my CPAP and its not helped any
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Meadow 40523 has been ill for about two years, sleeping 14 to 20 hours a day with a daily three- to four-hour nap, and fatigue so heavy they could barely think or follow what people were saying. A doctor attributes it all to sleep apnoea, which they have had for decades, but starting CPAP brought no improvement. They remain undiagnosed with ME/CFS and no better.
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What they tried
Also tried
Their words about each treatment
- CPAP · No change
since I started my CPAP and its not helped any
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about 2022 | became ill with severe unrefreshing sleep and daily exhaustionits been about 2 years for me tooIn context ↗ | Severe |
| 2024-11-29 | still sleeping 14-20 hours a day and napping 3-4 hours daily; CPAP gave no improvementI've been trying to convince him its CFS since I started my CPAP and its not helped any, but so far, no luck.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
it never made me sleep 14-20 hours a day. It never made me need a 3-4 hour nap every day.
In context ↗ - Brain fog
It never made me so tired throughout the day I could barely think or process what people were saying.
In context ↗