Long COVID with dysautonomia and chronic fatigue, somewhat better with Pepcid and Cymbalta
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 4 years
- Last post
- Jun 2024
In their words
- Condition: Long COVID
I have been diagnosed Long Covid Dysautonomia by 3 doctors.
In context ↗ - At worst: Moderate
I felt better today and walked to the garden. Huge mistake.
In context ↗ - Now: Somewhat better
It helped with some symptoms. Cured,???BIG NO
In context ↗ - Began after: COVID
I have been diagnosed Long Covid Dysautonomia by 3 doctors.
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Meadow 10061 has had long COVID since August 2021, diagnosed as dysautonomia alongside high heart rate and blood pressure, chronic fatigue, fibromyalgia, osteoporosis, COPD and CRPS; a heart monitor later showed SVT with rates to 220. Very low iron needed an iron infusion in hospital. Pepcid for nearly three years and Cymbalta helped some symptoms but brought no cure, and a walk to the garden in June 2024 was a huge mistake.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- this medicine · Worse
My heart rejected the meds
In context ↗ - iron infusion · Not said
I had to have an iron infusion also it was so low
In context ↗ - meds · Not said
they kept bringing meds as they found something testing low
In context ↗ - prescription Pepcid · Helped
I've been taking prescription Pepcid for nearly 3 years and cymbalta. ... It helped with some symptoms. Cured,???BIG NO
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3.8 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| August 2020 | Long COVID onsetI have been diagnosed Long Covid Dysautonomia by 3 doctors.In context ↗ | Not stated |
| 2024-01-16 | other symptoms lessened; SVT found on heart monitorMy other symptoms have lessened thankfullyIn context ↗ | Not stated |
| 2024-06-26 | crashed after walking to the gardenThis week has been hell. I felt better today and walked to the garden. Huge mistake.In context ↗ | Moderate |
| 2024-06-26 | still ill on Pepcid and CymbaltaIt helped with some symptoms. Cured,???BIG NOIn context ↗ | Moderate |
Adverse events
- “My heart rejected the meds, no doctor.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I have been diagnosed Long Covid Dysautonomia by 3 doctors.
In context ↗ - Heart symptoms & palpitations
The heart monitor showed my heart rate going to 220.
In context ↗ - Post-exertional malaise
I felt better today and walked to the garden. Huge mistake.
In context ↗ - Pain & fibromyalgia
I have high blood pressure and heart rate, chronic fatigue, fibromyalgia
In context ↗