ME/CFS
Outcome unclearIll for 10 years
ME/CFS with sore throat and lung irritation; pacing and lion's mane for mental clarity
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 10 years
- Last post
- Jan 2025
In their words
- Condition: ME/CFS
After 10 years of this, I just got diagnosed this month.
In context ↗ - At worst: Mild
I use all of my vacation time and sick time for recovery just so I can continue to work.
In context ↗
Summary
Maple 44965 had ME/CFS for about ten years before being diagnosed in December 2024. They work from home but spend all their vacation and sick time on recovery just to keep working, and have had sore throat and lung irritation plus a hospital stay for pneumonia of unknown cause. They started pacing with the Visible app and began lion's mane mushroom, which they say helps their mental clarity.
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What they tried
Their words about each treatment
- Visible app · Not said
I started using the Visible app to start pacing myself. I’m hoping that will allow me to keep it a little bit more controlled.
In context ↗ - lion's mane mushroom · Helped
I’ve started using lion’s mane mushroom and it really helps my mental clarity.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | Ill for about ten years before finally being diagnosedAfter 10 years of this, I just got diagnosed this month.In context ↗ | Mild | |
| — | Pneumonia of unknown cause, treated in hospitalI’ve gotten to the point where I have pneumonia in the hospital and no one knows why it started.In context ↗ | Not stated | |
| 2024-12-28 | Started pacing with the Visible app, hoping to keep the illness more controlledI started using the Visible app to start pacing myself. I’m hoping that will allow me to keep it a little bit more controlled.In context ↗ | Mild | Symptom-tracking apps and wearables (Visible) |
| 2025-01-27 | Mental clarity improved after starting lion's mane mushroomI’ve started using lion’s mane mushroom and it really helps my mental clarity.In context ↗ | Mild | AHCC and medicinal mushrooms (reishi, shiitake, maitake) |
Symptoms mentioned
Their words about their symptoms
- Flu-like symptoms
I get the sore throat and lung irritation
In context ↗ - Brain fog
it really helps my mental clarity
In context ↗