ME/CFS
Severe → no benefitIll for 22 years
ME/CFS 22 years, shower and sheets same day rare, low-dose naltrexone no lasting benefit
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 22 years
- Last post
- Aug 2025
In their words
- Condition: ME/CFS
I’ve made it 22 years.
In context ↗ - At worst: Severe
I took a (sitting) shower and changed my sheets today. Haven’t done both of those things in one day in probably at least half a year.
In context ↗ - Now: No benefit
It’s my birthday today, and I took a (sitting) shower and changed my sheets today. Haven’t done both of those things in one day in probably at least half a year.
In context ↗
Summary
Shore 50908 had been ill for 22 years by March 2025; managing a sitting shower and changing the sheets on the same day was unusual, something they had not done in about half a year. They took low-dose naltrexone for years and it helped a lot with pain at first, but the benefit faded and after about six years it seemed not to be helping at all, so they stopped. They reported no problems with it.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- LDN · Helped
I took LDN for years. It helped a lot with pain at first, but over the years it helped less until at about 6 years of taking it I stopped, as it didn’t seem to be helping at all anymore.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2003 | onset of illness; ill for 22 yearsI’ve made it 22 years.In context ↗ | Not stated |
| 2025-03-01 | birthday; managed a sitting shower and changing sheets in one dayI took a (sitting) shower and changed my sheets today. Haven’t done both of those things in one day in probably at least half a year.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
It helped a lot with pain at first
In context ↗