Long COVID heart rate spikes and blood pooling somewhat better with Florinef
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 16 months
- Last post
- Aug 2021
In their words
- Condition: Long COVID
most of my long covid symptoms have subsided
In context ↗ - At worst: Mild
I was very active before COVID (mainly running). I had to stop most exercise for 6 months
In context ↗ - Now: Somewhat better
Heart rate spikes, blood pressure drops, blood pooling, bad temperature regulation… though they are more under control/milder since I finished up 4 months of Florinef/Fludrocortisone.
In context ↗ - Began after: COVID
I lost 15lbs the first couple weeks of COVID
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Active and running before long COVID, they were eight months in when most of their symptoms subsided, leaving them about 20 lbs heavier than before (35 lbs total gain), which they linked to steroids taken in months 4–7 and to six months without exercise. They were cleared for exercise and could handle light cardio again by December 2020, and by August 2021 reported their heart rate spikes, blood pressure drops, blood pooling and poor temperature regulation were milder after four months of Florinef.
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What they tried
Also tried
Their words about each treatment
- medication for GERD · Not said
I’m still on medication for GERD, which COVID triggered.
In context ↗ - steroids · Worse
The steroid just made it a lot worse.
In context ↗ - exercise/light cardio · Not said
I’m finally cleared for exercise now and able to handle light cardio again
In context ↗ - changing my diet · Not said
I’m currently paying more attention to my diet than I ever have
In context ↗ - Florinef/Fludrocortisone · Helped
more under control/milder since I finished up 4 months of Florinef/Fludrocortisone
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2020 | first COVID symptoms; lost 15 lbs in the first weeksI’m 8 months out from first symptomIn context ↗ | Not stated | |
| 2020 (months 2-8) | had to stop most exercise for six months and was put on a steroidI had to stop most exercise for 6 months and was put on a steroid.In context ↗ | Mild | |
| 2020-12-14 | most long-COVID symptoms subsided, felt semi-normal, but 35 lbs heavierNow that I’m feeling semi normal again 8 months laterIn context ↗ | Mild | |
| 2021-08-19 | dysautonomia symptoms milder and under control; able to handle light cardiothough they are more under control/milder since I finished up 4 months of Florinef/FludrocortisoneIn context ↗ | Mild | Fludrocortisone / Florinef |
Adverse events
- Corticosteroid pulses“I was rapidly gaining before I was put on the steroid. The steroid just made it a lot worse.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Gut problems
I’m still on medication for GERD, which COVID triggered.
In context ↗ - POTS & dysautonomia
Heart rate spikes, blood pressure drops, blood pooling
In context ↗ - Temperature regulation
bad temperature regulation
In context ↗