Long COVID with severe fatigue, a little better after rest and supplements
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 16 months
- Last post
- Feb 2025
In their words
- Condition: Long COVID
I have been long hauling since February of 2023
In context ↗ - At worst: Moderate
The POTS-like symptoms were worst for me, plus severe fatigue ... neurological symptoms like tremors, dystonia, gait issues and tics
In context ↗ - Now: Somewhat better
I really have seen an immense improvement in my symptoms ... Very, very gradually they’ve been returning in the 6 months since
- Began after: COVID
in 2023, I came down with long covid
Read from 9 of their posts and comments; links to the 6 this page draws on
Summary
After ME/CFS diagnosed in 2016 was put in remission, they developed long COVID in February 2023 with severe fatigue, POTS-like and neurological symptoms, and unreal depression. A slow improvement from mid-2024 followed supplements, rest and mindfulness; five days of Paxlovid in July 2024 cleared every symptom for about a month, then symptoms returned muted and milder, with new vertigo at sleep onset eased by sleeping at an incline.
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What they tried
Also tried
Their words about each treatment
- homeopathy · Not said
I tried homeopathy, acupuncture, chiropractic and other “alternative” medicine on my own to try to recover.
In context ↗ - supplements · Helped
Finally, came back around to a small regimen of supplements that I maintain and it feels like my body is getting back its equilibrium.
In context ↗ - mindfulness body scans · Helped
Mindfulness body scans were very helpful for my nervous system.
In context ↗ - rest and sensory deprivation · Helped
That and being very diligent about mindfulness, rest, periods of sensory deprivation, the works.
In context ↗ - arginine · Helped a lot
what I suspect was vasospasm (arginine helped so much with my symptoms)
In context ↗ - Paxlovid · Helped a lot
I took the Paxlovid, and, starting on day 4 of the pills, for the following 5 days, every single one of my long covid symptoms completely disappeared.
In context ↗ - gabapentin · Helped
Gabapentin is so far the only pharmaceutical that has taken the edge off of my ANS symptoms.
In context ↗ - sleeping at an incline · Helped
the only thing I've found that provides relief is sleeping at an incline
In context ↗
Approaches: Antivirals · Mind-body practices
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| February 2023 | long COVID beganI have been long hauling since February of 2023In context ↗ | Moderate | |
| 2023 | worst phase: severe fatigue, POTS-like and neurological symptoms, unreal depression and anxiety, many ER tripsAt first, I spent hours researching, so many ER trips, so many doctors appointments, etc. The depression and anxiety were unreal.In context ↗ | Moderate | |
| mid-2024 | slow, gradual improvement after trying many supplements, then a break from them, then a small maintained regimenit’s been in the last 2 months that I really have seen an immense improvement in my symptomsIn context ↗ | Mild | |
| July 2024 | after a reinfection, a five-day Paxlovid course cleared every long COVID symptom for about three weeksevery single one of my long covid symptoms completely disappearedIn context ↗ | Near normal | Paxlovid / nirmatrelvir |
| 2025-02-04 | symptoms gradually returned muted and milder; new vertigo and electric-shock sensations when falling asleep, eased by sleeping at an inclineGradually, my symptoms are returning, but muted and more mild.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I’ve got all kinds of ANS dysfunction.
In context ↗ - Heart symptoms & palpitations
like my heart is doing somersaults in my chest
In context ↗ - Neuropathy & tingling
sending shockwaves down my arms and into my abdomen
In context ↗ - Anxiety & low mood
The depression and anxiety were unreal.
In context ↗
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