Miruvor
Sign up
ME/CFS Moderate → no benefit

Lifelong ME/CFS, practically housebound, tried cannabis with no overall improvement

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
lifelong (since elementary school)
Last post
Sep 2022
In their words
  • Condition: ME/CFSI use sativas because of my chronic fatigue In context ↗
  • At worst: ModerateI’ve been pretty much housebound forever In context ↗
  • Now: No benefitI’ve been pretty much housebound forever In context ↗
  • Began after: nothing they could nameI’m a lifelong sufferer - since elementary school because of my EDS. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

Request to remove this story

Summary

Dune 33567 dated their illness to elementary school, linking it to EDS, and described lifelong heaviness, chronic pain and being practically housebound, leaving home once or twice a month. They used cannabis from medical dispensaries, favouring the hybrid Blue Dream, which they said eased pain, helped sleep and made errands bearable.

Ask Miruvor AI

Asking aboutDune 33567’s story

What they tried

Their words about each treatment
  • medical cannabis · HelpedI was scared to use Indicas but I find that they help the pain and I feel better ... if I was on an island and had to pick a strain for the rest of my life, it would be Blue Dream In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
childhood (elementary school)illness began in elementary school, attributed to EDSI’m a lifelong sufferer - since elementary school because of my EDS. In context ↗Moderate
2022-09-08still largely housebound; cannabis (Blue Dream hybrid) eases pain and helps sleepI’ve been pretty much housebound forever so getting out like once or twice a month I have a good perspective on cannabis/CFS. In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaI find that they help the pain and I feel better In context ↗
  • Muscle weaknessnothing moves properly and everything is so heavy In context ↗

Ask Miruvor AI

Asking aboutDune 33567’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime