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Long COVID Severe → somewhat betterIll 4.5 years before improving or writing

Long COVID, over 50 days barely out of bed, somewhat better; rest, hydration for dizziness

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
4.5 years
Last post
Jun 2026
In their words
  • Condition: Long COVIDAll my long hauler symptoms started in late 2021 In context ↗
  • At worst: Severebarely being able to get out of bed or do anything at all In context ↗
  • Now: Somewhat betterMy air hunger is improving but I’m still fearful that flying will aggravate my symptoms. In context ↗
  • Began after: COVIDAll my long hauler symptoms started in late 2021 In context ↗
Read from 10 of their posts and comments; links to the 8 this page draws on

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Summary

A 28-year-old man has had long COVID since late 2021, with breathlessness, dizziness, gut and chest symptoms and no test answers. A 2025 infection left him barely able to get out of bed for over 50 days with severe dizziness, which lifted after rest and hydration. Air hunger then returned worse; by mid-2026 it was improving but he still feared flying. Aspirin and nattokinase caused blood in his stool.

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What they tried

What they credit

Their words about each treatment
  • baby aspirin · WorseI have been trying baby aspirin and nattokinase for my air hunger issues which I believe could be due to inflammation, micro clots. Which resulted in bloody stools when I take it. In context ↗
  • nattokinase · WorseI've never been able to take natto or aspirin consistently to resolve that, it always causes me to have blood when wiping In context ↗
  • lorazepam / benzos · HelpedThe only thing that slightly helps is the lorazepam which makes me think it might be a vestibular issue? I don't want to continue with that though because it comes back much worse later. In context ↗
  • physical therapy · No changeno specialist was able to help, not even physical therapy In context ↗
  • rest · HelpedI didn't really do anything or take anything besides just rest and hydration. In context ↗
  • short walks, light work outs, normal activity · No changeI've tried taking short walks outside in the sun to get some fresh air, light work outs in the gym, even trying to ignore the feeling and go about my day normally but I can't shake the feeling. In context ↗
  • Meclizine · No changeI've tried medications like Meclizine, Dramamine, Zyrtec, Famotidine, Zofran, Propranolol and Lorazepam. The only thing that slightly helps is the lorazepam In context ↗
  • Zyrtec · No changeI tried a Zyrtec in the morning and Famotidine at night combo it never seemed to do much for me In context ↗
  • breathing exercises · No changeBreathing exercises do nothing. In context ↗
  • anti-depressant · No changeI've tried to believe it was anxiety and have taken strong anxiety meds (lorazepam) and getting on an anti-depressant. Neither helps to relieve the pain. In context ↗

Approaches: Radical rest

Their path

Very severeSevereModerateMildNear normalRecovered3.8 y4 y4.2 y4.5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3.7 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
late 2021long COVID symptoms beganAll my long hauler symptoms started in late 2021 In context ↗Not stated
July 2025severe dizziness after a recent infection, barely able to get out of bedI’ve spent the last 50+ days trying to recover from my most recent infection which left me barely being able to get out of bed In context ↗Severe
late July 2025dizziness lifted, a few days of feeling normalSomehow those symptoms finally lifted and I had a few good days of feeling totally fine and normal In context ↗Near normal
August 2025air hunger returned worse, severe breathlessness episodesNow the air hunger and breathlessness has returned and it feels worse than it has in the past. In context ↗Moderate
October 2025constant chest tightness and discomfortSince then I’ve had a very strong discomfort in my chest In context ↗Moderate
June 2026air hunger improving but still avoiding flightsMy air hunger is improving but I’m still fearful that flying will aggravate my symptoms. In context ↗Moderate

Adverse events

  • Nattokinase“I have been trying baby aspirin and nattokinase for my air hunger issues ... Which resulted in bloody stools when I take it.” In context ↗ Gut side effects
  • Aspirin, Nattokinase“I’ve never been able to take natto or aspirin consistently to resolve that, it always causes me to have blood when wiping” In context ↗ Gut side effects

Symptoms mentioned

Their words about their symptoms
  • Breathlessnessthe air hunger and breathlessness has returned and it feels worse than it has in the past In context ↗
  • POTS & dysautonomiavery severe dizzy/lightheadedness and being off balance with no relief at all In context ↗
  • Gut problemsstill having moderate lower right abdominal pain In context ↗
  • Heart symptoms & palpitationsa very strong discomfort in my chest ranging from a funny/tingly feeling in my heart, chest heaviness, and tightness In context ↗
  • Temperature regulationI still can’t seem to regulate my body temp. I’m always feeling warm and clammy In context ↗
  • Anxiety & low moodI’m just so stressed out and feeling hopeless In context ↗

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