Severe ME/CFS, somewhat better with acceptance and avoiding processed food
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
since developing ME/CFS, a very-low-carb diet often makes me crash
In context ↗ - At worst: Severe
I went from severe to moderate.
In context ↗ - Now: Somewhat better
I went from severe to moderate.
In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
Osprey 11303 has ME/CFS and went from severe to moderate, coping through acceptance. They avoid processed food and eating out, which worsen their energy and pain, and keep carbs low to moderate; very-low-carb diets, fasting, saunas, cold plunges and zone 2 exercise have made them crash. An issue after their first meal improved with L-glutamine, zinc carnosine and butyrate. They gained about 10 kg and still struggle to get out of bed until evening.
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What they tried
Also tried
Their words about each treatment
- very-low-carb / keto diet · Worse
since developing ME/CFS, a very-low-carb diet often makes me crash
In context ↗ - eating at a better time · Not said
I've asked my family to force me to eat at a better time.
In context ↗ - acceptance and prioritizing peace · Helped
What helps me cope is acceptance and prioritizing peace.
In context ↗ - whole-foods diet with low to moderate carbs · Helped
For me, low to moderate healthy carbs work best. No-carb feels bad, and high-carb diets, especially those heavy in refined carbs, don't work well for me either.
In context ↗ - L-glutamine · Helped
It improved after I started taking L-glutamine, zinc carnosine, and butyrate.
In context ↗ - fasting · Much worse
I've crashed from fasting, keto, cold plunges, saunas, and zone 2 exercise before.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | severe ME/CFSI went from severe to moderate.In context ↗ | Severe |
| 2026-05-30 | improved from severe to moderate | Moderate |
| 2026-10-21 | moderate but crashes easily from fasting, keto, cold plunges, saunas and zone 2 exerciseI've crashed from fasting, keto, cold plunges, saunas, and zone 2 exercise before.In context ↗ | Moderate |
Adverse events
- Keto and low-carb diets“since developing ME/CFS, a very-low-carb diet often makes me crash” In context ↗ Made symptoms worse
- “I've crashed from fasting, keto, cold plunges, saunas, and zone 2 exercise before” In context ↗ Made symptoms worse
- Cryotherapy and cold exposure“I've crashed from fasting, keto, cold plunges, saunas, and zone 2 exercise before” In context ↗ Made symptoms worse
- Hyperthermia and sauna“I've crashed from fasting, keto, cold plunges, saunas, and zone 2 exercise before” In context ↗ Made symptoms worse
- Everyday exercise and activity“I've crashed from fasting, keto, cold plunges, saunas, and zone 2 exercise before” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
since developing ME/CFS, a very-low-carb diet often makes me crash
In context ↗ - Gut problems
I often experience it after my first meal of the day
In context ↗ - Pain & fibromyalgia
those foods tend to worsen my energy levels and pain
In context ↗ - Sleep problems
worse before my period, during periods of high stress, or after poor sleep
In context ↗