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ME/CFS Severe → somewhat better

Severe ME/CFS, somewhat better with acceptance and avoiding processed food

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill before improving or writing
Not stated
Last post
Oct 2026
In their words
  • Condition: ME/CFSsince developing ME/CFS, a very-low-carb diet often makes me crash In context ↗
  • At worst: SevereI went from severe to moderate. In context ↗
  • Now: Somewhat betterI went from severe to moderate. In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on

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Summary

Osprey 11303 has ME/CFS and went from severe to moderate, coping through acceptance. They avoid processed food and eating out, which worsen their energy and pain, and keep carbs low to moderate; very-low-carb diets, fasting, saunas, cold plunges and zone 2 exercise have made them crash. An issue after their first meal improved with L-glutamine, zinc carnosine and butyrate. They gained about 10 kg and still struggle to get out of bed until evening.

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What they tried

Also tried

acceptance and prioritizing peace· Helpedwhole-foods diet with low to moderate carbs· HelpedL-glutamine· Helpedzinc carnosine· Helpedbutyrate· Helpedvery-low-carb / keto diet· Worsecold plunges· Worsesaunas· Worsezone 2 exercise· Worsefasting· Much worseeating at a better time· Not said
Their words about each treatment
  • very-low-carb / keto diet · Worsesince developing ME/CFS, a very-low-carb diet often makes me crash In context ↗
  • eating at a better time · Not saidI've asked my family to force me to eat at a better time. In context ↗
  • acceptance and prioritizing peace · HelpedWhat helps me cope is acceptance and prioritizing peace. In context ↗
  • whole-foods diet with low to moderate carbs · HelpedFor me, low to moderate healthy carbs work best. No-carb feels bad, and high-carb diets, especially those heavy in refined carbs, don't work well for me either. In context ↗
  • L-glutamine · HelpedIt improved after I started taking L-glutamine, zinc carnosine, and butyrate. In context ↗
  • fasting · Much worseI've crashed from fasting, keto, cold plunges, saunas, and zone 2 exercise before. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—severe ME/CFSI went from severe to moderate. In context ↗Severe
2026-05-30improved from severe to moderateModerate
2026-10-21moderate but crashes easily from fasting, keto, cold plunges, saunas and zone 2 exerciseI've crashed from fasting, keto, cold plunges, saunas, and zone 2 exercise before. In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisesince developing ME/CFS, a very-low-carb diet often makes me crash In context ↗
  • Gut problemsI often experience it after my first meal of the day In context ↗
  • Pain & fibromyalgiathose foods tend to worsen my energy levels and pain In context ↗
  • Sleep problemsworse before my period, during periods of high stress, or after poor sleep In context ↗

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