Too tired for daily tasks, then a powerchair, somewhat better after CPAP
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2025
In their words
- Condition: ME/CFS
I was a teenager when I first started getting too tired to do normal stuff, and using a walking stick in my 20s.
In context ↗ - At worst: Moderate
I still have to have naps and the pain is still horrible
In context ↗ - Now: Somewhat better
After 18 months with a CPAP machine, I'm back to where I was several years ago for energy levels.
In context ↗ - Began after: nothing they could name
I was a teenager when I first started getting too tired to do normal stuff
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Shore 18190 became too tired to do normal things as a teenager, used a walking stick in their 20s and a powerchair in their 30s. A sleep study found they stopped breathing 74 times an hour, and after 18 months on CPAP their energy was back to where it had been several years earlier, though naps and severe pain remained. A short shop trip in the electric wheelchair still left them in bed from mid-afternoon.
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What they tried
What they credit
Also tried
Their words about each treatment
- cane / walking stick · Helped
And a cane makes a big difference to those situations.
In context ↗ - powerchair · Helped
When I use the power chair, I go from having to have a nap daily to being tired and ready for bed at 8 but still able to get up the next day.
In context ↗ - CPAP machine · Helped
After 18 months with a CPAP machine, I'm back to where I was several years ago for energy levels. I still have to have naps and the pain is still horrible, but it's made a difference in the decline.
In context ↗ - painkillers · Helped
Luckily I have some painkillers that help
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| teens | first too tired to do normal thingsI was a teenager when I first started getting too tired to do normal stuffIn context ↗ | Mild | |
| 20s | began using a walking stickusing a walking stick in my 20sIn context ↗ | Mild | |
| 30s | began using a powerchairPowerchair in my 30sIn context ↗ | Moderate | |
| 2025-10-03 | energy back to level of several years earlier after CPAPAfter 18 months with a CPAP machine, I'm back to where I was several years ago for energy levels.In context ↗ | Moderate | CPAP and sleep apnoea treatment |
| 2025-10-04 | in bed since mid-afternoon after a shop trip in the electric wheelchairI'm currently laid in bed and have been since half two this afternoon, because I went to the local shop in my electric wheelchairIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
the pain is still horrible
In context ↗ - Sleep problems
I still have to have naps
In context ↗ - Post-exertional malaise
I'm currently laid in bed and have been since half two this afternoon, because I went to the local shop in my electric wheelchair
In context ↗
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