Condition not stated
Mild → somewhat betterIll 1 year before improving or writing
Mostly in bed a month, somewhat better, nearly five weeks crash-free after dropping sports
- Condition
- Condition not stated
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 1 year
- Last post
- Sep 2025
In their words
- Condition: Condition not stated
could this still be chronic fatigue syndrome (CFS)
In context ↗ - At worst: Mild
spent a horrendous month mostly in bed in my free time, while just about being able to do my 9-5 office job from home
In context ↗ - Now: Somewhat better
i've gone almost five weeks crash-free ... My main issues are breathlessness and just ongoing tiredness.
In context ↗ - Began after: glandular fever or EBV
Blood tests eventually showed I had EBV
Read from 1 of their posts and comments; links to the one this page draws on
Summary
At 24, about a year ago he became unwell with lightheadedness and an unusually long cold; three months later blood tests showed EBV. After cutting alcohol and caffeine he returned to exercise too quickly—gym, up to 100 miles of cycling a week and tennis—then hit a wall and spent a month mostly in bed while barely doing his office job from home. After dropping sports, he had gone almost five weeks crash-free, still bothered by breathlessness and tiredness.
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What they tried
Also tried
Their words about each treatment
- taking a few months off from sports · Not said
After that, I took a few months off from sports, but I continued drinking alcohol and caffeine.
In context ↗ - cutting out alcohol · Helped
I later realized both of these were making me feel worse and causing crashes. Once I cut them out, I slowly returned to exercise
In context ↗ - return to exercise · Much worse
By the summer, I completely hit a wall and was utterly exhausted.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| around September 2024 | became unwell while starting a new job, with lightheadedness; later found to be EBVaround a year ago, I got really unwell ... I was experiencing lightheadedness and generally feeling terribleIn context ↗ | Mild |
| summer 2025 | hit a wall after heavy training, spent a month mostly in bed in free timeby the summer, I completely hit a wall and was utterly exhausted ... spent a horrendous month mostly in bed in my free timeIn context ↗ | Mild |
| September 2025 | almost five weeks crash-free, stable, commuting 25 miles a week by bikei've gone almost five weeks crash-free ... and I feel pretty stableIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
with occasional crashes once a month
In context ↗ - POTS & dysautonomia
I was experiencing lightheadedness and generally feeling terrible
In context ↗ - Flu-like symptoms
it was like an unusually long cold
In context ↗ - Breathlessness
My main issues are breathlessness and just ongoing tiredness
In context ↗