ME/CFS
Outcome unclear
ME/CFS: back spasm left them unable to walk for days, pain partly managed
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- May 2023
In their words
- Condition: ME/CFS
The only treatment I’ve been recommended for CFS has been CBT
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Pebble 31519 said the only CFS treatment offered was CBT, though they had already been in therapy for almost 20 years. Cannabis, started after a back spasm left them unable to walk or move for days, helped the pain immediately but worked less well with regular use. Wellbutrin, taken for bipolar, made getting out of bed marginally easier. Nanohydroxyapatite toothpaste improved dental sensitivity, and the pain stayed partly managed.
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What they tried
Also tried
cannabis· Helped · wore offWellbutrin· Helpednanohydroxyapatite toothpaste· Helpedtherapy / CBT· No changeOTC painkillers· No changekotoralac (ketorolac)· No changeopioids / narcotics· Worse
Their words about each treatment
- therapy / CBT · No change
The only treatment I’ve been recommended for CFS has been CBT ... I’ve been in therapy for almost 20 years WORKING on that same stuff
In context ↗ - opioids / narcotics · Worse
I can't take opioids/narcotics because they make me violently ill
In context ↗ - OTC painkillers · No change
nothing OTC works for me topically or orally
In context ↗ - kotoralac (ketorolac) · No change
even kotoralac doesn't work well orally and barely IV
In context ↗ - cannabis · Helped
it immediately helped. It doesn't help quite as much or as quickly now that I use it regularly, but it takes away enough of the pain for me to not notice it constantly and to be able to eat and sleep
In context ↗ - Wellbutrin · Helped
Wellbutrin has helped me marginally, but not enough to recommend it ... it's helped me to have a little bit of an easier time getting out of bed at least
In context ↗ - nanohydroxyapatite toothpaste · Helped
I got toothpaste containing it a couple months ago and have definitely noticed an improvement in my sensitivity
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2023-03-19 | back spasm left them unable to walk or move for daysa horrible back spasm that left me unable to walk or move for daysIn context ↗ | Severe |
| 2023-03-19 | cannabis relieved pain enough to eat and sleepit immediately helpedIn context ↗ | Moderate |
| 2023-03-19 | cannabis less effective with regular use; pain partly controlledIt doesn't help quite as much or as quickly now that I use it regularly, but it takes away enough of the painIn context ↗ | Moderate |
Adverse events
- “I can't take opioids/narcotics because they make me violently ill” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
takes away enough of the pain for me to not notice it constantly
In context ↗ - Anxiety & low mood
I also game mainly for relaxation and anxiety relief
In context ↗