ME/CFS
Moderate → no benefitIll for 10 years
Severe fatigue, panic attacks and brain fog with ME/CFS, no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 10 years
- Last post
- May 2026
In their words
- Condition: ME/CFS
My chronic fatigue first noticeably hit me 10 years ago
In context ↗ - At worst: Moderate
my body cannot work 40 hours per week ... I have NOTHING left in my body after class
In context ↗ - Now: No benefit
my symptoms are worse than ever
In context ↗ - Began after: stress or burnout
when taking on my first full-time job after college triggered several symptoms at once
Summary
They date their chronic fatigue to a first full-time job after college ten years earlier, bringing severe fatigue, panic attacks and brain fog; they could not keep the job. At part-time esthetician school they were about to quit their part-time job and had given up exercise because of post-exertional malaise and socialising because school left them with nothing. In April a short walk left them in bed all day; by May 2026 symptoms were worse than ever, with no diagnosis yet.
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What they tried
Also tried
various exercises· Worsestimulants· Not saidSSRI’s· Not saidmood stabilizers· Not saidantipsychotics· Not saidvitamins· Not saidhealthy diet· Not said
Their words about each treatment
- stimulants · Not said
It’s just been various stimulants, SSRI’s, mood stabilizers, antipsychotics, and vitamins
In context ↗ - SSRI’s · Not said
various stimulants, SSRI’s, mood stabilizers, antipsychotics, and vitamins
In context ↗ - mood stabilizers · Not said
SSRI’s, mood stabilizers, antipsychotics, and vitamins
In context ↗ - antipsychotics · Not said
mood stabilizers, antipsychotics, and vitamins
In context ↗ - vitamins · Not said
antipsychotics, and vitamins combined with healthy diet
In context ↗ - healthy diet · Not said
vitamins combined with healthy diet and trying out various exercises
In context ↗ - various exercises · Worse
trying out various exercises (not great, still get PEM from all of them)
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 10 years ago | chronic fatigue began after starting first full-time jobMy chronic fatigue first noticeably hit me 10 years ago when taking on my first full-time job after college triggered several symptoms at once.In context ↗ | Mild |
| 7 months after onset | had to leave full-time jobI couldn’t stay at the job after 7 monthsIn context ↗ | Mild |
| 2026-04-07 | crashed after a short walkI went for a short walk and ended up in bed all day. ... This morning I couldn’t even stand up to shower.In context ↗ | Severe |
| 2026-05-02 | symptoms worse than ever, life pared down to part-time schoolBut even this schedule is killing me, and my symptoms are worse than ever.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I get post-exertional malaise (PEM) after no matter how gently and consistently I exercise.
In context ↗ - Brain fog
Severe fatigue, panic attacks, brain fog
In context ↗ - Anxiety & low mood
my anxiety will eat me alive
In context ↗ - Sleep problems
waking up exhausted all week long
In context ↗ - Mast cell (MCAS) & allergies
I have seasonal allergies, too
In context ↗