Bedbound for almost a year with long COVID, now 60-70% better after supplements and mindset
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3.5 years
- Last post
- Jan 2025
In their words
- Condition: Long COVID
I contracted Covid in March 20 21 and slowly started the deteriorate.
In context ↗ - At worst: Severe
My worst days came in early June 20 22 and I was bedbound for almost a year.
In context ↗ - Now: Much better
I am 60-70% better
In context ↗ - Began after: COVID
I contracted Covid in March 20 21 and slowly started the deteriorate.
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
After a COVID infection in March 2021 she deteriorated and was bedbound for almost a year from June 2022 with PEM, POTS symptoms, tinnitus and vision problems. A heart attack in November 2023 and gastric bypass surgery in Mexico in June 2024, the latter making everything more challenging and at times worse. Over the last four months she regained strength and could walk 7 to 10 K steps a day, calling herself 60-70% better and crediting supplements, mindfulness and a changed mindset.
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What they tried
What they credit
Also tried
Their words about each treatment
- Changing my mindset to a much more positive one · Helped
it took me CHANGING my mindset to a much more positive one
In context ↗ - Supplements · Helped
I take a ton of supplements, I do a lot of mindful practicing, and I have really good days
In context ↗ - Mindful practicing / meditate · Helped
I do a lot of mindful practicing
In context ↗ - gastric bypass surgery · Worse
I decided to go to Mexico in June 20 24 and had gastric bypass surgery as you can assume, that has made everything a bit more challenging and at times worse
In context ↗ - Ashwaganda · Worse
the only thing I’m not able to tolerate at the moment is Ashwaganda
In context ↗ - cold plunge and cold showers · Worse
I’ve tried the cold plunge and showers, and I’m left feeling like I have adrenaline surging through me afterwards
In context ↗ - sauna · Helped
Heat is something that my body really craves. I do feel really good in the sauna
In context ↗ - sun and swimming outside · Not said
outside in the sun sweating and swimming is well tolerated too
In context ↗ - grounding · Not said
I do grounding, exercise exercises, meditate and soak in a magnesium bath every day
In context ↗ - magnesium bath · Not said
soak in a magnesium bath every day
In context ↗
Approaches: Mind-body practices
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 15 months after onset: the story doesn’t say how ill they were before that. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| March 2021 | COVID infection followed by slow deteriorationI contracted Covid in March 20 21 and slowly started the deteriorate.In context ↗ | Not stated |
| early June 2022 | bedbound for almost a yearMy worst days came in early June 20 22 and I was bedbound for almost a year.In context ↗ | Severe |
| November 2023 | heart attackeven suffered a heart attack in November 2023In context ↗ | Not stated |
| June 2024 | gastric bypass surgery in Mexico made everything more challenging and at times worseI decided to go to Mexico in June 20 24 and had gastric bypass surgery as you can assume, that has made everything a bit more challenging and at times worse.In context ↗ | Not stated |
| January 2025 | walking 7 to 10 K steps a day, 60-70% better but not 100%I’m now able to walk 7 to 10 K steps a day.In context ↗ | Mild |
Adverse events
- Other surgery (adrenal, lung, venoplasty)“had gastric bypass surgery as you can assume, that has made everything a bit more challenging and at times worse” In context ↗ Made symptoms worse
- Ashwagandha“the only thing I’m not able to tolerate at the moment is Ashwaganda” In context ↗ Side effects
- Cryotherapy and cold exposure“I’ve tried the cold plunge and showers, and I’m left feeling like I have adrenaline surging through me afterwards. ... I just know I feel pretty symptomatic after I do that.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I also suffered from what I understand is PEM
In context ↗ - POTS & dysautonomia
I woke up with pot symptoms, tachycardia, specifically
In context ↗ - Heart symptoms & palpitations
even suffered a heart attack in November 2023
In context ↗ - Tinnitus
I also suffered from what I understand is PEM, tinnitus, extreme fatigue
In context ↗ - Vision problems
my eyes staring at the screen of my phone don’t focus like they should at times
In context ↗ - Anxiety & low mood
I have a lot of medical anxiety surrounding symptoms
In context ↗ - Breathlessness
and a feeling of breathlessness
In context ↗
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