ME/CFS
Severe → no benefitIll for 9 years
Nine years of ME/CFS symptoms, unable to work or study, duloxetine and pregabalin no help
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 9 years
- Last post
- May 2026
In their words
- Condition: ME/CFS
They suggested me/cfs a few months ago and after doing my research i realized that for once all of my symptoms matched
In context ↗ - At worst: Severe
I cant even sit on a chair for more than 30 min without my dizziness and pain getting unbearable.
In context ↗ - Now: No benefit
My symptoms started 9 years ago and i have yet to find a diagnosis. I cannot attend college or hold a job
In context ↗ - Began after: nothing they could name
My symptoms started 9 years ago and i have yet to find a diagnosis.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Moon 22985 has had symptoms for nine years without a diagnosis, unable to attend college or hold a job. Doctors raised ME/CFS a few months ago but dropped it after duloxetine and pregabalin did not help. Any activity, even walking to the bathroom, worsens symptoms, and sitting upright for 30 minutes brings unbearable dizziness and pain. They remain ill and are asking whether ME/CFS is still possible.
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What they tried
Also tried
Their words about each treatment
- duloxetine · No change
they eliminated the option after i was unresponsive to duloxetine and pregabalin
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2017 | symptoms began, no diagnosis sinceMy symptoms started 9 years ago and i have yet to find a diagnosis.In context ↗ | Not stated |
| — | symptoms became less manageable than beforei used to be quite active back when my symptoms were more manageableIn context ↗ | Mild |
| 2026-05-18 | still undiagnosed, unable to study or workI cannot attend college or hold a job and it's heavily affecting my lifeIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
yet any sort of activity even just walking to the bathroom and back makes my symptoms worse
In context ↗ - POTS & dysautonomia
I cant even sit on a chair for more than 30 min without my dizziness and pain getting unbearable
In context ↗ - Pain & fibromyalgia
my dizziness and pain getting unbearable
In context ↗ - Anxiety & low mood
my mental health is bad because of my physical health not the other way around
In context ↗