Condition not stated
Mild → no benefitIll for 4 years
Long illness with muscle pain, unrefreshing sleep and exhaustion; no improvement
- Condition
- Condition not stated
- At worst
- Mild (working or studying, with limits)
- Ill for
- 4 years
- Last post
- Nov 2025
In their words
- Condition: Condition not stated
whether I’m just being a sick note or I should push my GP for a referral to look at CFS?
In context ↗ - At worst: Mild
my workplace are refusing to reduce my hours ... I can only just manage a 20 minute walk a few times a week
In context ↗ - Now: No benefit
I have never felt well since then
In context ↗ - Began after: COVID
I had a long bout of Covid 4 years ago
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Four years after a long bout of COVID, followed by two horse riding accidents, three operations and an exhaustion breakdown, they have never felt well. They report permanent muscle pain, unrefreshing sleep, night sweats, reflux and exhaustion the day after activity such as socialising, shopping or working, managing only a 20 minute walk a few times a week. They still work, but their employer refuses reduced hours; their GP calls it perimenopause and stress.
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What they tried
Also tried
Their words about each treatment
- BHRT · No change
I’m on BHRT and my hormones are at optimal levels yet symptoms persist
In context ↗ - iron infusions · Not said
I’ve had iron infusions, vit d is good, all blood markers normal
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 4 years ago | long bout of Covid, then horse riding accidents, operations and an exhaustion breakdownI had a long bout of Covid 4 years ago followed by two horse riding accidents, 3 operations and an exhaustion breakdown all the following year - I have never felt well since thenIn context ↗ | Not stated |
| 2025-11-30 | still unwell, working but only managing short walksthese days I can only just manage a 20 minute walk a few times a weekIn context ↗ | Mild |
Symptoms mentioned
Gut problemsLight & noise sensitivityPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulation
Their words about their symptoms
- Post-exertional malaise
always feel exhausted the next day adter I’ve been socialising, or shopping, or working
In context ↗ - Sleep problems
can not sleep or if i do sleep well it’s never enough
In context ↗ - Pain & fibromyalgia
permanent muscle pain - hips, shoulders, neck, wrists
In context ↗ - Light & noise sensitivity
exhaustion from driving or going into the office (lights, noise exhaust me
In context ↗ - Temperature regulation
night sweats (recently returned despite HRT knocking those on the head 2 years ago), feel the cold easily
In context ↗ - Gut problems
Have now developed reflux in the last 2 months, never suffered with that before.
In context ↗