ME/CFS
No benefit
ME/CFS after EBV, still unwell with no improvement; isotretinoin link unclear
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jun 2020
In their words
- Condition: ME/CFS
Then I get EBV 1 year later and I never recovered from this virus.
In context ↗ - Now: No benefit
I never recovered from this virus.
In context ↗ - Began after: glandular fever or EBV
Then I get EBV 1 year later and I never recovered from this virus.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Glacier 69570 took low-dose isotretinoin for about a year for acne, then stopped because of depressive thoughts, all-day tiredness and occasional muscle pain; those symptoms cleared after stopping. About a year later they developed EBV and say they never recovered. At the time of writing they still reported greasy skin and hyperhidrosis and were unsure whether isotretinoin was related.
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What they tried
Also tried
sports· Helpedisotretinoin / accutane· Worse
Their words about each treatment
- isotretinoin / accutane · Worse
I took isotretinoin for I guess about 1 year on a low dose therapy but I discontinued it as I felt depressive thoughts, I was tired all day
In context ↗ - sports · Helped
only sports helped me to be awake
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| 1 year after stopping isotretinoin | EBV infection, never recoveredThen I get EBV 1 year later and I never recovered from this virus.In context ↗ |
| 2020-06-19 | still not recovered; reports greasy skin and hyperhidrosisI still think my hormone level isn’t normal as my skin got greasier again and I have hyperhidrosis (I sweat way more than others).In context ↗ |
Adverse events
- Isotretinoin (Accutane)“I felt depressive thoughts” In context ↗ Mood or psychiatric effects
- Isotretinoin (Accutane)“I was tired all day and only sports helped me to be awake” In context ↗ Side effects
- Isotretinoin (Accutane)“felt muscular pain from time to time” In context ↗ Side effects
- Isotretinoin (Accutane)“The problems with dry skin due to isotretinoin ended after I stopped taking it” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
I discontinued it as I felt depressive thoughts
In context ↗ - Pain & fibromyalgia
at felt muscular pain from time to time
In context ↗ - Temperature regulation
I have hyperhidrosis (I sweat way more than others).
In context ↗