Long COVID with faint smell and numbness, nearly normal after scent training and vitamin B
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2 years
- Last post
- Aug 2022
In their words
- Condition: Long COVID
after another long hauler mentioned it helping the tingling in the hands
In context ↗ - At worst: Mild
Yes, the short bouts of exercise seem to clear pathways in the brain the next day.
In context ↗ - Now: Near normal
I knew I was better when my body wanted to dance.
In context ↗ - Began after: COVID
I also have had good results adding Aspirin recently (after another long hauler mentioned it helping the tingling in the hands).
Read from 11 of their posts and comments; links to the 10 this page draws on
Summary
After long COVID, they had faint smell and numbness and tingling on the right side plus reactions to dairy and wheat. They said full smell returned by month six with topical black seed oil and scent training, vitamin B stopped the numbness within a day or two, and aspirin and loratadine helped; electrolytes set the tingling off. By August 2022 they knew they were better.
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What they tried
What they credit
Also tried
Their words about each treatment
- Black Seed Oil · Helped
I also used Black Seed Oil topically. ... but it works.
- scent training · Not said
Also have been doing some scent training, in small doses.
In context ↗ - Aspirin · Helped
I also have had good results adding Aspirin recently
In context ↗ - Loratadine (Claritin) · Helped
I know adding an antihistamine worked a little for me.
In context ↗ - Electrolytes · Worse
I was doing Electroytes too and it worked at first, but over time I noticed it induced the tingling for me.
In context ↗ - Vitamin B / B12 · Helped
B Vitamins is what worked best. ... Every time I do, it stops within a day or two.
- short bouts of exercise · Helped
Yes, the short bouts of exercise seem to clear pathways in the brain the next day.
In context ↗
Approaches: H1 antihistamines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| mid-2020 | long COVID with loss of most of their sense of smellMy full sense of smell has come back at month 6.In context ↗ | Mild | |
| December 2020 | losing feeling on the right side of hand and footI went to a doc because was losing feeling on my right side in hand and foot in certain spots.In context ↗ | Mild | |
| December 2020 - January 2021 | sense of smell and taste coming backi noticed when i walked my hood and could smell something different at each house. Food has started tasting amazing again too.In context ↗ | Mild | |
| early 2021 | tingling brought on by electrolytesI was doing Electroytes too and it worked at first, but over time I noticed it induced the tingling for me.In context ↗ | Mild | |
| February 2021 | B vitamins stopped the tingling within a day or twoAdd B vitamins. Every time I do, it stops within a day or two.In context ↗ | Mild | Vitamin B12 |
| April 2022 | vitamin B12 helping a little with remaining symptomsVitamin B12 helps a little.In context ↗ | Mild | Vitamin B12 |
| August 2022 | felt betterI knew I was better when my body wanted to dance.In context ↗ | Near normal |
Adverse events
- Black seed oil (Nigella sativa)“it burns especially if you kinda snort it accidentally up your sinus. but it works.” In context ↗ Side effects
- Salt, electrolytes and fluids“I was doing Electroytes too and it worked at first, but over time I noticed it induced the tingling for me.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Loss of smell or taste
My full sense of smell has come back at month 6.
In context ↗ - Neuropathy & tingling
Started to lose feeling in feet.
In context ↗ - Mast cell (MCAS) & allergies
my response levels came back to dairy and wheat
In context ↗
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