ME/CFS
Outcome unclear
ME/CFS fog and fading by afternoon, Ritalin gave energy to evening
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Mar 2016
In their words
- Condition: ME/CFS
I currently have a 60% disability rating (that I had to fight for) from the VA for CFS
In context ↗
Summary
Hare 28965 had CFS through years of VA care from 2007 to 2010, where dozens of medication cocktails were a nightmare; private insurance in 2010 let them see civilian doctors. Around 2011 they began Ritalin, 20 mg in the morning and 10 mg in the afternoon, enough energy to reach the evening, though they still fade and fog by early afternoon. Adderall and Provigil worked less well; 20 mg in the afternoon was too much and hurt their sleep.
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What they tried
Also tried
Ritalin· HelpedAdderall· HelpedProvigil/Nuvigil· Helpedmedication cocktails (VA 'brute force' regiment)· Worse
Their words about each treatment
- medication cocktails (VA 'brute force' regiment) · Worse
I can't even recall the dozens and dozens of medication cocktails they put me on. It was a nightmare
In context ↗ - Ritalin · Helped
after trial and error, 20 mg ended up being the right dose for me
In context ↗ - Adderall · Helped
I also have had experience with Adderall and Provigil/Nuvigil ... but none of them worked as well as Ritalin.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | CFS, later rated 60% disabled by the VAI currently have a 60% disability rating (that I had to fight for) from the VA for CFSIn context ↗ | Not stated |
| 2007-2010 | years of VA medication cocktails with no productive careI can't even recall the dozens and dozens of medication cocktails they put me on. It was a nightmareIn context ↗ | Not stated |
| about 2011 | started Ritalin and could last the dayTaking it that late in the day gives me enough (fake) energy to make it to the evening and thankfully not jack up my sleep.In context ↗ | Mild |
| 2016-03-18 | still fades and fogs in the early afternoon on Ritalin2-2:30 pm I really start to fade and fogIn context ↗ | Mild |
Adverse events
- Methylphenidate (Ritalin, Concerta)“I tinkered with 20mg in the afternoon and it was waaaaay too much for me. Made me jittery and really influenced my sleep in a negative way.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
2-2:30 pm I really start to fade and fog
In context ↗