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ME/CFS Mild → no benefitIll for 12 years

ME/CFS with fatigue, vertigo and crashes after exercise; gym left them wrecked

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
12 years
Last post
Dec 2022
In their words
  • Condition: ME/CFSis it sensible to believe this could be caused by CFS? In context ↗
  • At worst: MildI've had on and off episodes where it feels nearly impossible to work or go to school FT. In context ↗
  • Now: No benefitI've really noticed these symptoms are getting worse the last few years. In context ↗
  • Began after: another virusI caught a virus that lingered on and on. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A 28-year-old who fell ill at 16 after a lingering virus, with fatigue that rest did not relieve, vertigo, monthly migraines, sore bruised-feeling muscles and crashes after exercise. They improved enough to function but felt their body never fully recovered, with on-and-off spells where full-time work or school was nearly impossible. A gym membership in October 2022 left them wrecked a month later, and they had not worked a full week that December.

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What they tried

Also tried

gym / working out· Much worseadjusted my eating· Not said
Their words about each treatment
  • gym / working out · Much worseI was excited to work out but noticed that I was feeling really weak and faint afterwards. ... my body, even a month later, still feels wrecked. In context ↗
  • adjusted my eating · Not saidI thought it might be a nutritional or blood sugar thing so I adjusted my eating and persisted on. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset2 y4 y6 y8 y10 y12 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
age 15/16lingering virus, months of exhaustion and missed schoolI caught a virus that lingered on and on. In context ↗Mild
a few months laterimproved enough to return to school and sportsEventually, things got better and I "fully recovered." In context ↗Mild
October 2022crashed after starting at the gymmy body, even a month later, still feels wrecked In context ↗Mild
December 2022still exhausted, not managing full work weeksI haven't worked a full week in December because I'm just so tired In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisemy body seems to hate when I exercise In context ↗
  • Sleep problemsI'll get 10+ hour sleeps and still wake up feeling groggy and not fresh In context ↗
  • POTS & dysautonomiaI'm prone to vertigo spells and will get them when I'm run down and tired In context ↗
  • Pain & fibromyalgiamy body feels sore and tight In context ↗
  • Headaches & migraineMonthly migraines In context ↗
  • Muscle weaknessI've noticed that my body seems weaker and more prone to getting sick In context ↗
  • Anxiety & low moodI've dealt with anxiety before In context ↗

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