ME/CFS
Outcome unclear
ME/CFS, PEM and breathing problems; bedbound three weeks; filters and breathing exercise
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- May 2026
In their words
- Condition: ME/CFS
If I'm exhausted or in PEM, I still don't have any drive
In context ↗ - At worst: Severe
I have a wheelchair and would highly recommend it. It makes it possible for me to go to the mall and go on walks.
In context ↗
Read from 10 of their posts and comments; links to the 9 this page draws on
Summary
Vale 15500 has ME/CFS, with PEM, breathing problems, headaches and noise sensitivity, and uses an electric wheelchair for shopping and walks. Forcing activity on advice to ignore the body led to three weeks bedbound. Screen filters and lower brightness ended the headaches, a physical therapist's breathing exercise eased years of breathing problems, and an air purifier and dehumidifier helped breathing.
Ask Miruvor AI
What they tried
Also tried
smutty books (fantasy and dark romance)· Helpedwheelchair· Helpedyellow filter and lower screen brightness· Helpedbreathing exercise from physical therapist· HelpedBose QC35 noise-cancelling headphones· Helpedair purifier· Helpeddehumidifier· Helpedwork chair (saddle stool with wheels)· Helpedforcing myself to do things and not listen to my body· Much worseiron supplements· Not said
Their words about each treatment
- forcing myself to do things and not listen to my body · Much worse
needed to force myself to do things and not listen to my body, and that would make me healthy. I tried for two days and ended up bedbound for three weeks
In context ↗ - smutty books (fantasy and dark romance) · Helped
one thing that really helped for me was smutty books like fantasy romance and dark romance
In context ↗ - wheelchair · Helped
I have a wheelchair and would highly recommend it. It makes it possible for me to go to the mall and go on walks
In context ↗ - yellow filter and lower screen brightness · Helped
using a yellow filter and decreasing brightness on all my devices. I used to get killer headaches before I did this
In context ↗ - breathing exercise from physical therapist · Helped
She gave me an exercise that helped a lot.
In context ↗ - Bose QC35 noise-cancelling headphones · Helped
I have bose qc 35 and they have been a life saver!
In context ↗ - air purifier · Helped
An air purifier helped a lot for me.
In context ↗ - dehumidifier · Helped
I had trouble breathing when the humidity was over 80% so i got a dehumidifier as well
In context ↗ - iron supplements · Not said
I've had a doctor tell me I was just iron deficient and put me on supplements when the blood tests showed that all my iron levels were good
In context ↗ - work chair (saddle stool with wheels) · Helped
I also got a work chair, basically a saddle shaped stool with wheels, to use for tasks at home which has helped a lot.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| — | bedbound for three weeks after forcing activity on ANS adviceI tried for two days and ended up bedbound for three weeks.In context ↗ | Severe | |
| 2025-02-25 | electric wheelchair makes mall trips and walks possibleIt makes it possible for me to go to the mall and go on walks.In context ↗ | Moderate | |
| 2025-03-16 | yellow filter and lower screen brightness stopped headachesI used to get killer headaches before I did this.In context ↗ | Moderate | |
| 2025-10-03 | physical therapist's breathing exercise eased air hungerShe gave me an exercise that helped a lot.In context ↗ | Moderate | Meditation, yoga, breathwork |
| 2026-05-31 | uses electric wheelchair out of the house and a wheeled stool for cookingI mostly use it for cooking when standing is too taxing.In context ↗ | Moderate |
Adverse events
- Everyday exercise and activity“I tried for two days and ended up bedbound for three weeks.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
If I'm exhausted or in PEM, I still don't have any drive
In context ↗ - Headaches & migraine
I used to get killer headaches before I did this.
In context ↗ - Light & noise sensitivity
I have bose qc 35 and they have been a life saver!
In context ↗ - Breathlessness
I struggled with this for years until my physical therapist pointed out that I was breathing wrong.
In context ↗