ME/CFS
Outcome unclear
ME/CFS: walks 3-5 miles but extreme fatigue after light chores; tried keto, antivirals
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Nov 2022
In their words
- Condition: ME/CFS
I’m just thinking that HSV-1 is a huge contributing factor to my CFS
In context ↗ - At worst: Mild
I have successfully been walking 3-5 miles most days
In context ↗ - Began after: a vaccination
I think mine came from the guardasil shot.
In context ↗
Read from 11 of their posts and comments; links to the 9 this page draws on
Summary
A Reddit user who dates their ME/CFS to a Gardasil shot described walking 3-5 miles most days but feeling extremely fatigued after light chores during a cold sore outbreak. They said a ketogenic diet helped significantly and that alcohol made them much more productive. Years of daily acyclovir or valacyclovir and high-dose lysine had not reduced their cold sores, and ADHD medication gave them migraines.
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What they tried
Also tried
Their words about each treatment
- keto · Helped
Keto helps me significantly.
In context ↗ - lysine · No change
I take lysine regularly, have for years and still have major outbreaks.
In context ↗ - acyclovir · No change
Yes I’ve been on acyclovir or valcyclovir daily for years. No luck on less frequent or severe outbreaks unfortunately.
In context ↗ - promethazine · Not said
A good one is promethazine. It’s an antihistamine but it helps with nausea significantly and it can also help with migraines.
In context ↗ - bananas · Helped
But I have found that bananas significantly help with nausea
In context ↗ - alcohol · Helped a lot
Alcohol actually helps me immensely.
In context ↗ - ADHD meds · Worse
With meds I’m a mess because they give me migraines.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| — | onset of ME/CFS, attributed to a Gardasil shotI think mine came from the guardasil shot.In context ↗ | Not stated | |
| 2022-10-16 | said a ketogenic diet was the best option they had foundTry keto. Best option I’ve found for myself.In context ↗ | Mild | Keto and low-carb diets |
| 2022-10-19 | crashed with extreme fatigue during a cold sore outbreakToday I’m mildly depressed due to this nasty ass shit on my face but I feel extremely fatigued today.In context ↗ | Mild | |
| 2022-10-29 | energy okay most days, walking 3-5 miles most days; alcohol makes them more productivemost days my energy level has been okay ... I have successfully been walking 3-5 miles most daysIn context ↗ | Mild |
Adverse events
- Stimulants (unspecified)“With meds I’m a mess because they give me migraines.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Gut problems
I have found that bananas significantly help with nausea
In context ↗ - Headaches & migraine
With meds I’m a mess because they give me migraines.
In context ↗ - Brain fog
Just literally shitty brain issues that equate to not being able to function properly without meds.
In context ↗ - Anxiety & low mood
Today I’m mildly depressed due to this nasty ass shit on my face
In context ↗