Housebound with long COVID and vomiting, now much better with low-FODMAP diet and pacing
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Jun 2025
In their words
- Condition: Long COVID
i have autonomic neuropathy from LC
In context ↗ - At worst: Severe
Before I accepted that I had to be housebound or have constant PEM I was vomiting daily, unable to keep down meds.
In context ↗ - Now: Much better
now i can leave the house for a couple hours several days a week, do household chores, and cook w the use of a rolling work stool
In context ↗ - Began after: COVID
i have autonomic neuropathy from LC
In context ↗
Read from 8 of their posts and comments; links to the 7 this page draws on
Summary
Between late 2024 and mid-2025 they described being severely ill and housebound, vomiting daily and unable to keep medication down, with autonomic neuropathy and constant cold and sweating. A low-FODMAP diet stopped most vomiting and eased pain; pacing, radical rest, migraine medication Ajovy and a simplified diet let them leave home for a few hours several days a week.
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What they tried
What they credit
Also tried
Their words about each treatment
- low fodmap diet · Helped a lot
before this I was throwing up regularly, sometimes daily ... Vomiting now only occurs during PEM, and digestive pain is a minor distraction
In context ↗ - nicotine gum · Not said
I only take 1/4 of the 2mg gum at once, and don't chew it before i place it between my gums. more than that and I get lightheaded nd tachycardic
In context ↗ - never quite eating to satiety · Helped
I've found success never quite eating to satiety, my nervous system can't prepare to digest if it doesn't think im full
In context ↗ - linzess · Helped
linzess helped me too! terrible med but its better than having to uh,, get the blockage manually removed
In context ↗ - pacing · Helped
luckily improved a lot w pacing, radical rest, migraine med Ajovy, cutting out sugar/simplifying my diet, cane chair use, and avoiding reinfection
In context ↗ - radical rest · Helped
luckily improved a lot w pacing, radical rest, migraine med Ajovy, cutting out sugar/simplifying my diet
In context ↗ - Ajovy (migraine med) · Helped
luckily improved a lot w pacing, radical rest, migraine med Ajovy
In context ↗
Approaches: Diet · Pacing · Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | severely ill and housebound, vomiting daily, unable to keep medication downBefore I accepted that I had to be housebound or have constant PEM I was vomiting daily, unable to keep down meds.In context ↗ | Severe | |
| 2024-11-17 | vomiting and gut pain much reduced on a low FODMAP dietVomiting now only occurs during PEM, and digestive pain is a minor distraction.In context ↗ | Moderate | |
| 2025-06-28 | able to leave the house for a couple of hours several days a weeknow i can leave the house for a couple hours several days a week, do household chores, and cook w the use of a rolling work stool.In context ↗ | Moderate | Pacing and the energy envelope |
Adverse events
- Nicotine patches“more than that and I get lightheaded nd tachycardic” In context ↗ Low blood pressure or fainting
Symptoms mentioned
Their words about their symptoms
- Gut problems
Vomiting now only occurs during PEM, and digestive pain is a minor distraction.
In context ↗ - POTS & dysautonomia
i have autonomic neuropathy from LC
In context ↗ - Temperature regulation
I'm constantly cold and sweating too much, and then overheating extremely easily and almost feeling feverish.
In context ↗ - Post-exertional malaise
When I go into cold environments (like under 40° F) I start shivering so badly it gives me PEM.
In context ↗ - Headaches & migraine
migraine med Ajovy
In context ↗ - Mast cell (MCAS) & allergies
i have an adhesive allergy
In context ↗ - Heart symptoms & palpitations
I get lightheaded nd tachycardic
In context ↗ - Pain & fibromyalgia
helped even w pain outside my gut
In context ↗
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