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ME/CFS Mild → no benefitIll for 2 years

ME/CFS worsening despite rest, with severe brain fog and crashes, no improvement

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
2 years
Last post
Apr 2024
In their words
  • Condition: ME/CFSI (18) started getting chronic fatigue (assumed it was chronic fatigue but I’m starting to grow suspicious that it’s something more) symptoms during my first college-course In context ↗
  • At worst: MildI was doing a L3 course in art but got moved down to L2 due to poor attendance and work ... all the breaks I spend resting In context ↗
  • Now: No benefitit’s just gotten worse and worse In context ↗
  • Began after: nothing they could namestarted getting chronic fatigue ... symptoms during my first college-course around… 2 or so years ago In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A student who started getting chronic fatigue symptoms around age 16, about two years before writing, describes symptoms that have only worsened despite resting and taking days off college. They report severe brain fog, a prolonged crash, and severe exhaustion from walking to the bus stop, and were moved down a course level because of poor attendance and work. They describe no improvement, and say their doctor blamed the illness on stress and discharged them within the hour.

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What they tried

Their words about each treatment
  • days off college and breaks spent resting · No changeMy symptoms haven’t improved whatsoever despite all the days off college I’m taking ... and all the breaks I spend resting. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2022chronic fatigue symptoms began during first college coursestarted getting chronic fatigue ... symptoms during my first college-course around… 2 or so years ago In context ↗Mild
2024-04-15symptoms kept worsening; moved down a course level over poor attendanceit’s just gotten worse and worse In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseNothing seems to ease this prolonged crash I’m having In context ↗
  • Brain fogthe severe brain-fog I get from trying to concentrate In context ↗

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