ME/CFS worsening despite rest, with severe brain fog and crashes, no improvement
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 2 years
- Last post
- Apr 2024
In their words
- Condition: ME/CFS
I (18) started getting chronic fatigue (assumed it was chronic fatigue but I’m starting to grow suspicious that it’s something more) symptoms during my first college-course
In context ↗ - At worst: Mild
I was doing a L3 course in art but got moved down to L2 due to poor attendance and work ... all the breaks I spend resting
In context ↗ - Now: No benefit
it’s just gotten worse and worse
In context ↗ - Began after: nothing they could name
started getting chronic fatigue ... symptoms during my first college-course around… 2 or so years ago
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A student who started getting chronic fatigue symptoms around age 16, about two years before writing, describes symptoms that have only worsened despite resting and taking days off college. They report severe brain fog, a prolonged crash, and severe exhaustion from walking to the bus stop, and were moved down a course level because of poor attendance and work. They describe no improvement, and say their doctor blamed the illness on stress and discharged them within the hour.
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What they tried
Their words about each treatment
- days off college and breaks spent resting · No change
My symptoms haven’t improved whatsoever despite all the days off college I’m taking ... and all the breaks I spend resting.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022 | chronic fatigue symptoms began during first college coursestarted getting chronic fatigue ... symptoms during my first college-course around… 2 or so years agoIn context ↗ | Mild |
| 2024-04-15 | symptoms kept worsening; moved down a course level over poor attendanceit’s just gotten worse and worseIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Nothing seems to ease this prolonged crash I’m having
In context ↗ - Brain fog
the severe brain-fog I get from trying to concentrate
In context ↗