Long COVID two years in and still very limited, now somewhat better with time and pacing
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Oct 2024
In their words
- Condition: Long COVID
After two years of long covid
In context ↗ - At worst: Moderate
Still very limited but definitely getting so much better from living like a shut in.
In context ↗ - Now: Somewhat better
Pacing plus heart monitor has helped tremendously. Still very limited but definitely getting so much better from living like a shut in.
In context ↗ - Began after: COVID
After two years of long covid
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
A Reddit user with long COVID described being two years in, still very limited but getting much better from having lived like a shut in, after a viral reinfection, a bad case of EBV and then tachycardia. They tried a lot of things without benefit; only time and pacing, plus wearing a heart monitor, helped, and by late 2024 they said they were getting so much better. Covid boosters left them out for 48-72 hours and flu shots made them ill for a week.
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What they tried
Also tried
Their words about each treatment
- time · Helped
time and rest were the only things that helped me
In context ↗ - pacing and rest · Helped a lot
the only things that have helped are time and pacing
In context ↗ - heart monitor · Helped
Pacing plus heart monitor has helped tremendously.
In context ↗ - flu shot · Worse
I stopped getting the flu shot too, because it guaranteed I’d get sick with flu for a week immediately after the shot.
In context ↗ - covid booster · Worse
With every covid booster I’ve gotten—I was out for 48-72 hours guaranteed.
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.1 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022 | long COVID onsetAfter two years of long covidIn context ↗ | Not stated | |
| year one | viral reinfection and a bad case of EBV, then tachycardia in year twoPlus viral re-infection, bad case of EBV one year then, tachycardia on year two.In context ↗ | Not stated | |
| 2024 | improving with pacing and a heart monitorPacing plus heart monitor has helped tremendously.In context ↗ | Moderate | Pacing and the energy envelope |
| 2024-10-24 | getting a handle on it and joy back in lifeI'm just barely starting to get a handle on it and have joy back in my life.In context ↗ | Moderate |
Adverse events
- Flu vaccine“I stopped getting the flu shot too, because it guaranteed I’d get sick with flu for a week immediately after the shot.” In context ↗ Side effects
- COVID vaccination as treatment“With every covid booster I’ve gotten—I was out for 48-72 hours guaranteed.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
Brain fog and fatigue are the last two things to improve
In context ↗ - Heart symptoms & palpitations
tachycardia on year two
In context ↗
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