Bedridden or housebound for a month with ME/CFS, much better on low-dose naltrexone
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 1 year
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
under LDN I have CFS with associated dysautonomia and POTS
In context ↗ - At worst: Severe
poi un mese di down totale (allettato o costretto a casa nei giorni migliori)
In context ↗ - Now: Much better
we both have a relatively good level of functionality. I actually still train, although sometimes I end up experiencing PEM
In context ↗ - Began after: a bacterial or tick-borne infection
infezione passata (che ha innescato la sindrome)
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
A former high-level athlete developed ME/CFS symptoms in June/July 2025, while recovering from a postoperative staph infection after knee surgery. He spent a month bedridden or housebound, then improved objectively on low-dose naltrexone, with orthostatic tachycardia down 60-70% and HRV rising. By early 2026 he was training six times a week and still trains, though brain fog, tinnitus, fragmented sleep and PEM persisted.
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What they tried
What they credit
Also tried
Their words about each treatment
- LDN · Helped a lot
Dopo inizio di LDN miglioramento oggettivo e sostanziale.
In context ↗ - movimento · Not said
I actually still train, although sometimes I end up experiencing PEM
In context ↗ - integrazione · Not said
su tutti gli aspetti su cui potessi intervenire (igiene sonno, alimentazione, integrazione, movimento)
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| June/July 2025 | symptoms began, with ups and downs over two to three monthssintomi insorti giugno/luglio 2025, alti e bassi (piu bassi) per 2/3 mesiIn context ↗ | Not stated | |
| autumn 2025 | a month of total down, bedridden or housebound at bestpoi un mese di down totale (allettato o costretto a casa nei giorni migliori)In context ↗ | Severe | |
| around November 2025 | objective, substantial improvement after starting LDNDopo inizio di LDN miglioramento oggettivo e sostanzialeIn context ↗ | Mild | Low-dose naltrexone |
| 2026-06-09 | still training six times a week with some improvement, symptoms persistingThere has been some improvement, especially in terms of physical strengthIn context ↗ | Mild | Low-dose naltrexone |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
if I go over a certain threshold I have PEM
In context ↗ - Brain fog
brain fog (which has improved)
In context ↗ - POTS & dysautonomia
CFS with associated dysautonomia and POTS
In context ↗ - Sleep problems
disturbi del sonno(i peggiori per me)
In context ↗ - Temperature regulation
temperature regulation problems
In context ↗ - Light & noise sensitivity
quando riacutizzano, può darmi estrema irritabilità anche la presenza di una persona
In context ↗
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