Bedbound with long COVID, somewhat better now with propranolol and mushrooms
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2.5 years
- Last post
- Aug 2023
In their words
- Condition: Long COVID
I got covid back in Nov 2020 and I’ve been feeling like this ever since.
In context ↗ - At worst: Severe
At home I couldn’t even leave bed and forget about intimacy or house chores
In context ↗ - Now: Somewhat better
I actually live a life I enjoy, despite all my symptoms and relapses ... now I’m able to do little by little
In context ↗ - Began after: COVID
I got covid back in Nov 2020
Summary
Marsh 89176, a 28-year-old woman, fell ill with long COVID in November 2020 and became bedbound, nearly failing nursing school. Misdiagnosed with anxiety, she began care at a post-COVID clinic in August 2022 and took propranolol and hydroxyzine; the heart medication eased her palpitations after two months. Psychedelic mushrooms and relaxation videos later helped her enjoy life and do a little more, though her symptoms and relapses continue.
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What they tried
What they credit
Their words about each treatment
- antidepressants · No change
I’ve been on heart medication, antihistamine and antidepressants - NOTHING WORKED !
In context ↗ - shrooms · Helped a lot
I did shrooms for the first time ever in my life(approx one year into LC) ... Then I kept micro-dosing. And I’ve been microdosing ever since.
In context ↗ - propranolol · Helped
I’m now taking beta blockers- propanol as needed, up to 40 mg. Game changer !!!
In context ↗ - hydroxyzine · Helped
Currently only on hydroxyzine25 mg and propranolol -up to 40mg.
In context ↗ - shaolin relaxation · Helped a lot
I wake up and I immediately do this and its helped me tremendously since I was unable to work out at all ... I attribute it to this!
In context ↗
Approaches: Mind-body practices · Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 21 months after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| Nov 2020 | COVID-19 infection, followed by long COVIDI got covid back in Nov 2020 and I’ve been feeling like this ever since.In context ↗ | Not stated | |
| third semester of nursing school | bedbound, grades plummeted, nearly failed nursing schoolAt home I couldn’t even leave bed and forget about intimacy or house chores, if it wasn’t for my husband id honestly probably be deadIn context ↗ | Severe | |
| approx one year into LC | first shroom session and ongoing microdosing lifted her moodthe shrooms buried my sadness towards myselfIn context ↗ | Not stated | |
| August 1, 2022 | started care at post-COVID centre, diagnosed with dysautonomia, started propranololI’m now taking beta blockers- propanol as needed, up to 40 mg. Game changer !!!In context ↗ | Moderate | Propranolol (Inderal) |
| 2023-08-15 | enjoys life and can do a little activity, but still has symptoms and relapsesI actually live a life I enjoy, despite all my symptoms and relapsesIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I have dysutonomia.
In context ↗ - Heart symptoms & palpitations
Still no taste or smell, severe palpitations.
In context ↗ - Loss of smell or taste
I still can’t taste or smell.
In context ↗ - Brain fog
plus reading difficulties and dyslexic tendencies
In context ↗ - Anxiety & low mood
the shrooms buried my sadness towards myself
In context ↗
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