ME/CFS
Mild → no benefitIll for 5 years
Constant nausea, dizziness and weakness with ME/CFS; no help from stimulants or supplements
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 5 years
- Last post
- Apr 2025
In their words
- Condition: ME/CFS
r/chronicfatigue
In context ↗ - At worst: Mild
I work a very physical job ... any physical activity intensifies this feeling to the point where I don’t even know where I am.
In context ↗ - Now: No benefit
I’ve tried everything ... I’m so lost and feel hopeless.
In context ↗ - Began after: nothing they could name
I started noticing it when I was 14. During that time I was smoking a lot of weed.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 20-year-old who first felt detached and zoned out at 14, about five years before writing; stopping weed and vaping did not help. Two and a half years ago symptoms became constant nausea, dizziness and weakness, worsened by any physical activity and threatening their physical job. Stimulants, antidepressants and supplements gave no help, workouts made things worse, a stimulant prescribed after a sleep study seemed to worsen things, and many tests came back normal.
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What they tried
Also tried
Their words about each treatment
- stimulants · Worse
multiple medications including stimulants ... which they prescribed me a new stimulant for and it seems like it is making it worse
In context ↗ - anti depressants · No change
multiple medications including stimulants and anti depressants with no help
In context ↗ - supplements · No change
I’ve tried supplements with no help
In context ↗ - working out · Worse
working out which just makes me feel even worse
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 14 | first felt detached, not in their body and zoned outI started noticing it when I was 14. During that time I was smoking a lot of weed.In context ↗ | Mild |
| about 2 1/2 years ago | symptoms switched to constant nausea, dizziness and weaknessAbout 2 1/2 years ago it all switch. I now feel nauseous, dizzy, and weak all the time.In context ↗ | Mild |
| 2025-04-17 | still doing a physical job, symptoms intense after minimal workToday all I did was climb a pole and hammer some stuff into it at the top and I’m sitting in the truck now contemplating if I’m gonna throw up, my body feels super weak and my hands are shaking off the walls.In context ↗ | Mild |
Adverse events
- Stimulants (unspecified)“they prescribed me a new stimulant for and it seems like it is making it worse.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Gut problems
I have felt nothing but nauseous, dizziness, and weakness everyday
In context ↗ - POTS & dysautonomia
I now feel nauseous, dizzy, and weak all the time
In context ↗ - Muscle weakness
my body feels super weak and my hands are shaking off the walls
In context ↗ - Post-exertional malaise
It’s nonstop 24/7 for years and intensifies like crazy from minimal work
In context ↗ - Brain fog
any physical activity intensifies this feeling to the point where I don’t even know where I am
In context ↗ - Anxiety & low mood
I’m honestly getting to such a low point in my life
In context ↗