ME/CFS
Outcome unclearNeeds ongoing treatment
Hospitalised several times with ME/CFS, using a sleep routine that mostly worked
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Apr 2020
In their words
- Condition: ME/CFS
I’m having a hard time with pacing throughout this moving process.
In context ↗ - At worst: Mild
I’ve been packing boxes little bits at a time and then resting.
In context ↗
Summary
Fox 79554 wrote in r/cfs in early 2020 about struggling to pace while moving house, having been hospitalised several times when they ignored their body. With help they got through the move. By April 2020 they slept from 4pm to 10pm, woke every hour or two, did not feel rested but said the routine mostly worked for them, and had been diagnosed with narcolepsy without cataplexy.
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What they tried
Also tried
night-job sleep schedule· Helpedpacing· Not said
Their words about each treatment
- pacing · Not said
having a hard time with pacing throughout this moving process
In context ↗ - night-job sleep schedule · Helped
I kept close to the same schedule
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2020-02-10 | packing to move while pacing; hospitalised in the past after overdoing itI’ve ended up in the hospital on numerous occasions when I didn’t listen to what my body was telling me.In context ↗ | Mild |
| 2020-04-22 | settled on a night-shifted sleep schedule; diagnosed with narcolepsyNow I sleep from 4-10pm most days (intermittent sleep is normal for me so I wake up every 1-2 hours anyways)In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I’ve ended up in the hospital on numerous occasions when I didn’t listen to what my body was telling me.
In context ↗ - Sleep problems
intermittent sleep is normal for me so I wake up every 1-2 hours anyways
In context ↗ - Neuropathy & tingling
thanks to my pinched nerve, I quickly quit it
In context ↗