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Long COVID Somewhat betterNeeds ongoing treatment

Long COVID tingling, burning feet and fatigue, somewhat better with loratadine and aspirin

Condition
Long COVID
At worst
Not stated
Ill before improving or writing
Not stated
Last post
Sep 2023
In their words
Read from 19 of their posts and comments; links to the 11 this page draws on

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Summary

Beacon 57473 became severely ill in Seattle just before New Year's Eve 2019, in a period they connected to early SARS-CoV-2, and since then had tingling, burning feet, fatigue and times when their legs didn't work, while still working 10-hour days on their feet. In May 2023 loratadine 10 mg cleared most of the tingling within days, and low-dose aspirin, antihistamines and Prilosec helped some symptoms and heartburn. Months later the antihistamines worked only some days.

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What they tried

Their words about each treatment
  • antihistamines (loratadine/Claritin) · Helped a lotMy first day on the antihistamines made it all go away immediately. In context ↗
  • Prilosec · HelpedI take a Prilosec everyday along with a Claritin and that helps In context ↗
  • aspirin low dose · HelpedAspirin helps me. In context ↗
  • chewing on cigars · HelpedI took to chewing on cigars and that has helped me out a lot In context ↗
  • Advil · Not saidI do eat Advil like pez In context ↗
  • LSD · HelpedI just eat acid and it gives me relief for the day. In context ↗
  • keeping as active as I can · HelpedI have found I need to keep as active as I can to keep from getting worse In context ↗
  • cut all fruit out of my diet · HelpedI cut all fruit out of my diet and that has helped too In context ↗

Approaches: H1 antihistamines · Proton pump inhibitors · Anticoagulants · Exercise and activity

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
dec19COVID-19, original strain; a week in bed with severe breathlessnessI became so sick I was having so much difficulty breathing that I was almost truly convinced that I needed to go to the ER In context ↗Severe
2023-05-06tingling and numbness cleared, no fatigue, legs stopped burningDay 2 and holy cow! It's actually working!!! The tingling in my right hand is gone now as well!!! In context ↗MildLoratadine (Claritin)
2023-07-11antihistamine benefit became inconsistent; still working 10-hour days on feetSome days the antihistamines work and some days they don't In context ↗Mild
2023-08-10slow improvement while staying activeI'm barely beginning to get better In context ↗Mild
2023-09-28ongoing loose stools and heartburn, partly helped by Prilosec, Claritin and cutting fruitI take a Prilosec everyday along with a Claritin and that helps. I cut all fruit out of my diet and that has helped too In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaI mean yeah, I get dizzy In context ↗
  • BreathlessnessI was having so much difficulty breathing that I was almost truly convinced that I needed to go to the ER In context ↗
  • Heart symptoms & palpitationsIt was more frequent at the peak of my LC, but it has lessened In context ↗
  • Gut problemsI have the shits more often than not and I have heartburn all the time In context ↗

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