ME/CFS
Outcome unclear
ME/CFS with IBS, nausea and constant pain; cannabis edibles helped sleep and appetite
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Aug 2025
Summary
They described ME/CFS with IBS and nausea that made eating unpleasant and constant pain, relying on protein shakes and bars when they could not face food. Cannabis edibles brought deep sleep, appetite and less pain and tension; hypochlorous acid spray was used for facial dermatitis and rashes. They developed stomach problems after starting Mounjaro, possibly unrelated, and were lowering the dose to see if it eased pain. They bathed every two to three days, as before their illness.
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What they tried
Also tried
Hypochlorous acid· Helpedprotein shakes and protein bars· Helpededible· Helpedlong baths· Helpedmounjaro· Not said
Their words about each treatment
- Hypochlorous acid · Helped
it's a very effective topical antibacterial. I use it for clearing up sebheorric dermatitis on my face (caused by candida)
In context ↗ - protein shakes and protein bars · Helped
It's not as good as actual food, but it helps more than reaching 9:30pm and realizing that I last ate for dinner the night before.
In context ↗ - edible · Helped
It also stimulates my appetite so that I can eat a normal meal and suppresses nausea.
In context ↗ - mounjaro · Not said
This is my experience on mounjaro, too. I did develop stomach problems after starting it, though they may be unrelated.
In context ↗ - long baths · Helped
I prefer what I call "long baths" that just leave me feeling like Marat because I feel so much better with the warmth and gentle pressure.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | ME/CFS onset at an unstated datewhich is the same as before I got sickIn context ↗ | Mild |
| 2025-08-28 | still ill; coping with nausea, IBS and constant pain, relying on protein drinks and bars to eatI try to bathe or shower once every 2-3 days, which is the same as before I got sick.In context ↗ | Mild |
Adverse events
- Cannabis (THC, marijuana)“I stop subconsciously holding my joints in place, which can lead to some over stretching in my joints that fades remarkably quickly” In context ↗ Other
- Tirzepatide (Mounjaro, Zepbound)“I did develop stomach problems after starting it, though they may be unrelated.” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Gut problems
I struggle with this, as well as IBS and general nausea that make eating deeply unpleasant
In context ↗ - Pain & fibromyalgia
I'm trying out stepping down my dose to see if it helps ease some of the constant pain.
In context ↗