Post-viral syndrome with insomnia and palpitations, now much better after a COVID vaccine
- Condition
- Condition not stated
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 18 months
- Last post
- Apr 2022
In their words
- Condition: Condition not stated
post virus syndrome ... The virus that triggered my illness was not from the coronavirus
In context ↗ - At worst: Moderate
I was lucky to sleep for a few hours each night ... could not tolerate living
- Now: Much better
I began to make significant recovery, and am now about 80% of where I used to be. Insomnia and exercise intolerance remain to some degree, but I can otherwise live a fairly normal life.
In context ↗ - Began after: another virus
The virus that triggered my illness was not from the coronavirus
Read from 8 of their posts and comments; links to the 6 this page draws on
Summary
Harbor 64886 developed post-viral syndrome after an unidentified virus in 2018, with insomnia, anxiety, temperature dysregulation, palpitations and headaches. After 18 months with no meaningful improvement, symptoms eased from 8/10 to 4/10 over six months. By early 2021 they lived a normal life with some difficulties; a COVID vaccine seemed to be a game changer after two years. By April 2022 they were about 80% of their old self, with insomnia and exercise intolerance.
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What they tried
What they credit
Also tried
Their words about each treatment
- keto diet · Not said
despite following a keto diet for many years
In context ↗ - sleeping pills · No change
various types of sleeping pills - most of which did not work at all
In context ↗ - cannabis · Helped
One thing that did help was cannabis at night.
In context ↗ - melatonin · Helped
melatonin + cannabis worked the best
In context ↗ - The Sleep Book by Guy Meadows · Helped
There is a terrific book called The Sleep Book by Guy Meadows which helped me enormously
In context ↗ - coconut water and other carbs · Helped
I embarked on a strict diet of regular consumption of coconut water and other carbs
In context ↗ - the vaccine · Helped
the vaccine seemed to be the game changer for me
In context ↗ - time · Helped a lot
Time is the primary medicine for this disease/condition.
In context ↗
Approaches: Vaccination
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2018 | post-viral syndrome after an unidentified virusI've been dealing with post virus syndrome for the past 2.5 years.In context ↗ | Moderate | |
| 18 months in | symptoms began to lessen, still in a world of discomfortAt the 18 month mark (roughly), I noticed that the severity of the symptoms had begun to lessen, although I was still in a world of discomfort.In context ↗ | Moderate | Time and spontaneous remission |
| about 2 years in | severity fell from 8/10 to 4/10 over six monthsI went from a 8/10 in severity level to a 4/10 over the course of the next 6 monthsIn context ↗ | Mild | Time and spontaneous remission |
| 2021-01-18 | living a normal life with some difficultiesWhereas before I could not tolerate living, now I'm living a normal life, just with some difficulties.In context ↗ | Near normal | Time and spontaneous remission |
| early 2022 | two years of headaches resolvedMight went after 2 years - the vaccine seemed to be the game changer for meIn context ↗ | Near normal | COVID vaccination as treatment |
| 2022-04-01 | about 80% of former self; insomnia and exercise intolerance remainafter the first 2 years I began to make significant recovery, and am now about 80% of where I used to be. Insomnia and exercise intolerance remain to some degree, but I can otherwise live a fairly normal life.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Insomnia and exercise intolerance remain to some degree
In context ↗ - Anxiety & low mood
anxiety, temperature dysregulation
In context ↗ - Temperature regulation
temperature dysregulation, heart palpitations
In context ↗ - Heart symptoms & palpitations
heart palpitations, chronic headaches
In context ↗ - Headaches & migraine
chronic headaches
In context ↗
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