ME/CFS
Mild → somewhat betterIll 7 years before improving or writing
ME/CFS with constant fatigue, PEM and severe anxiety, now somewhat better
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 7 years
- Last post
- Mar 2025
In their words
- Condition: ME/CFS
I had my first ME episode in 2018 and lasted for about a year and half.
In context ↗ - At worst: Mild
I am in the 70% on the scale of cfs.
In context ↗ - Now: Somewhat better
A bit better in some ways. It takes way more to trigger PEM and the fight or flight is gone but I developed migraines with an aura…still overall id say i am better than when I posted that comment.
In context ↗ - Began after: COVID
After a few covid infections last year it slowly but surely came back and worse than before…
Read from 11 of their posts and comments; links to the 7 this page draws on
Summary
A 25-year-old professional swimmer who first had an ME episode in 2018, recovered to 90-95% for three and a half years, then relapsed after COVID in September 2023 and an October cold. He stopped training in December 2023 with constant fatigue, PEM and severe anxiety. By December 2024 he could barely work a couple of hours a day as a coach; by March 2025 he found PEM harder to trigger and his fight-or-flight response gone, though migraines with aura had appeared.
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What they tried
Their words about each treatment
- ferrous sulfate · Not said
even after supplementing 3 times a day with 250mg ferrous sulfate
In context ↗ - return to the gym · Worse
I tried to return to the gym but I was hit almost every time with PEM
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 18 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2018 | first ME episodeI had my first ME episode in 2018 and lasted for about a year and half.In context ↗ | Not stated |
| 2019 | recovered 90-95% for three and a half yearsAfter that I was recovered 90-95% for 3 years and a half.In context ↗ | Near normal |
| September 2023 | mild COVID, fine after two weeksI had a mild for in september(my 4th time getting covid and the mildest form).Got better in 2 weeksIn context ↗ | Near normal |
| October-November 2023 | cold, then downhill until rock bottom during trainingAfter this cold everything started going downhill in the course of the month until in November when I hit rock bottom during training.In context ↗ | Mild |
| December 2023 | stopped training, full rest, severe anxiety and depressionI kept dragging myself training until 20th of December when I decided to stop training and go for full rest.Since then my mental health has also declined into severe anxiety and depressionIn context ↗ | Mild |
| March 2024 | constant fatigue, PEM on gym attempts, walking 5 km a dayI can walk 5km per day or even a bit more and most of the time I dont trigger PEM but I do feel the constant fatigue lurking.In context ↗ | Mild |
| June 2024 | office job, PEM almost daily, still slowly worseningI got myself an office job but I trigger PEM almost daily due to walking to work and concentrating at work.In context ↗ | Mild |
| December 2024 | coaching about two hours a day, no support from familycan barely work 2 hours a day as a coach for my team but I dont know how long I can keep this upIn context ↗ | Mild |
| March 2025 | a bit better, PEM harder to trigger, anxiety gone, migraines with aura appearedA bit better in some ways. It takes way more to trigger PEM and the fight or flight is gone but I developed migraines with an aura…still overall id say i am better than when I posted that comment.In context ↗ | Mild |
Symptoms mentioned
Anxiety & low moodHeadaches & migraineHeart symptoms & palpitationsMuscle weaknessPain & fibromyalgiaPost-exertional malaise
Their words about their symptoms
- Post-exertional malaise
I tried to return to the gym but I was hit almost every time with PEM
In context ↗ - Pain & fibromyalgia
Cramping legs especially thighs and slight pain
In context ↗ - Muscle weakness
my legs feeling heavy and cramping at the slightest effort
In context ↗ - Anxiety & low mood
my mental health has also declined into severe anxiety and depression
In context ↗ - Headaches & migraine
I developed migraines with an aura
In context ↗ - Heart symptoms & palpitations
fatigue gets worse to the point I can’t move, high heart rate
In context ↗