ME/CFS
Outcome unclear
ME/CFS with pain, unable to bathe some days; tried buprenorphine patch and iron infusions
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Jun 2024
In their words
- Condition: ME/CFS
This disorder is the worst, we gotta stick together
In context ↗ - At worst: Mild
I can stand but I do have the nausea and pain and there are days I just can’t.
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
From April to June 2024 the user posted in r/chronicfatigue about ongoing chronic fatigue with nausea and pain, with days when they could not bathe, and round-the-clock opioid needs after spinal fusions. Oxycodone severely affected their mood, and they were on a buprenorphine patch, which worked well. Iron infusions for anemia definitely helped but did not fix the fatigue, and they relied on no-rinse wipes and dry shampoo.
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What they tried
Also tried
Morphine· HelpedBuleenorphine patch· Helpedsupplements· Helpediron infusions· HelpedOxycodone· WorseSpinal fusions· Not said
Their words about each treatment
- Spinal fusions · Not said
After awve. Spinal fusions I need round the clock opiod but this one I could not take.
In context ↗ - Oxycodone · Worse
Oxycodone affected my mood severely. After awve. Spinal fusions I need round the clock opiod but this one I could not take.
In context ↗ - Morphine · Helped
Morphine is good but doctors do not want to give it…. Or any narcotics.
In context ↗ - Buleenorphine patch · Helped
I am on a Buleenorphine patch right now and although I was extremely weary of it, but it does work well.
In context ↗ - supplements · Helped
when I first started with the same supplements they took a while for any real progress.
In context ↗ - iron infusions · Helped
I get iron infusions for that but it definitely helps.
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | onset of chronic fatigue, date not givenThis disorder is the worst, we gotta stick together :)In context ↗ |
| 2024-05-13 | nausea and pain; days unable to batheI can stand but I do have the nausea and pain and there are days I just can’t.In context ↗ |
| 2024-06-15 | still ill; trouble sleeping when cold, anemia flaresI can’t sleep when I am cold unless my anemia is playing up.In context ↗ |
Adverse events
- Oxycodone (OxyContin, Endone)“Oxycodone affected my mood severely.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Gut problems
I do have the nausea and pain
In context ↗ - Sleep problems
I can’t sleep when I am cold unless my anemia is playing up.
In context ↗