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ME/CFS Moderate → no benefitIll for 14 years

Lifelong exhaustion and brain fog in ME/CFS, no benefit from Vyvanse or antidepressants

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
14 years
Last post
Sep 2024
In their words
  • Condition: ME/CFSI feel like it’s CFS, I haven’t been diagnosed In context ↗
  • At worst: ModerateI barely have the energy to to the bare minimum things in a day In context ↗
  • Now: No benefitStill just as tired. In context ↗
  • Began after: nothing they could nameever since I was a child I’ve always been ridiculously tired In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Sequoia 60043, 26, has felt ridiculously tired since childhood no matter how much they sleep, with brain fog and unrefreshing sleep, and suspects CFS though undiagnosed. They take 20 mg of Vyvanse and have been put on and taken off a cocktail of antidepressants and other drugs with no benefit. They are in university, struggle to do basic daily tasks, and also have anxiety, depression, PTSD and BPD. No improvement is reported.

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What they tried

Their words about each treatment
  • antidepressants · No changemy doctor assumed depression and prescribed me antidepressants ... I've been put on and taken off a cocktail of different drugs to no avail. Still just as tired. In context ↗
  • Vyvanse · Not saidI take 20 mg of Vyvanse as prescribed by my psychiatrist. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 y6 y9 y12 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
childhoodlifelong exhaustion began in childhoodever since I was a child I’ve always been ridiculously tired In context ↗Mild
2024-09-16still exhausted at university, no treatment has helpedI’m in university and I already feel so behind and overwhelmed In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsNo matter how much sleep I get, I always feel exhausted In context ↗
  • Brain fogmy brain goes into energy preservation mode where my head is in the clouds In context ↗
  • Anxiety & low moodI also have anxiety, depression, PTSD, and BPD In context ↗

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