ME/CFS
Moderate → no benefit
ME/CFS and POTS, wheelchair help; physiotherapy resistance exercise gave no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Dec 2025
In their words
- At worst: Moderate
I’m moderate to severe so it’s not too bad but it’s not invisible.
In context ↗ - Now: No benefit
recently that hasn’t been going well and I keep overdoing it(things that definitely wouldn’t overdo it before)
In context ↗
Read from 8 of their posts and comments; links to the 6 this page draws on
Summary
An under-18 with ME/CFS and POTS who uses a rollator, manual and power chair and got their first wheelchair at 14. Physiotherapy that pushed resistance exercise left them in crying pain every night, and they have been overdoing it recently. In late December they went to the ER, which was not very helpful, and were admitted. They can travel only with wheelchair help and long sleep-ins.
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What they tried
Also tried
Their words about each treatment
- mobility aids / conserving energy · Helped
taking a power chair walk outside makes me feel the best.
In context ↗ - physical therapy: resistance bicycle and leg pushes · Worse
At my pt she mad me do bicycle with resistance for 6 mins and push 75 with my feet and more. I have been in crying pain every night since.
In context ↗ - migraine cocktail · Not said
I really only got a migraine cocktail and then admitted which I thought was bc they were going to do testing
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| age 14 | already ill enough to need a wheelchair for a family weddingI first started using a wheelchair when I was 14 and we were invited to a wedding.In context ↗ | Moderate | |
| 2025-11-03 | physiotherapy pushing resistance exercise, flare where they could not walkI have been in crying pain every night since.In context ↗ | Severe | Physical therapy / physiotherapy |
| 2025-12-02 | travels only with wheelchair and long sleep-insI’m moderate to severe so it’s not too bad but it’s not invisible.In context ↗ | Moderate |
Adverse events
- Physical therapy / physiotherapy“At my pt she mad me do bicycle with resistance for 6 mins and push 75 with my feet and more. I have been in crying pain every night since.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I keep overdoing it(things that definitely wouldn’t overdo it before)
In context ↗ - POTS & dysautonomia
My pots hates it
In context ↗ - Pain & fibromyalgia
I have been in crying pain every night since.
In context ↗ - Headaches & migraine
I really only got a migraine cocktail
In context ↗