ME/CFS
Moderate → no benefitIll for 20 years
ME/CFS with cognitive blocking and sluggish movement; no lasting improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 20 years
- Last post
- Jul 2024
In their words
- Condition: ME/CFS
Fatigue and cognitive blocking is so bad
In context ↗ - At worst: Moderate
I can hardly formulate sentences between the blunting and voice mangling. Emails are very challenging.
In context ↗ - Now: No benefit
Everything resolves fully every few weeks for less than a day.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Meadow 25249, 25, described extreme cognitive restriction from age 5 to 22 and voice symptoms, with brief full remissions every few weeks lasting less than a day. They reported cognitive blocking and blunting, forehead pains and heavy, sluggish movement, and had extensive testing plus trials of escitalopram, fluoxetine, clonazepam, LDN and fexofenadine. No lasting improvement was described; symptoms persisted at the time of posting.
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What they tried
Also tried
Their words about each treatment
- Every supplement · Not said
Every supplement
In context ↗ - methylene blue · No change
though I saw no improvement with methylene blue/alcar
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| age 5 | cognitive restriction beganExtreme cognitive restriction from 5 to 22In context ↗ | Not stated |
| 2024-07-26 | still had cognitive blocking and voice symptomsI can hardly formulate sentences between the blunting and voice mangling. Emails are very challenging.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Brain fog
Feels like I'm pushing through a rubber wall to think
In context ↗ - Headaches & migraine
Sometimes I get twisting and knotting pains behind my forehead.
In context ↗ - Muscle weakness
Movement is sluggish and heavy.
In context ↗